DEB… im actually a great believer of postive thinking can help things. Ive used that to pull myself out of depressive states in the past. Phobias and things like negative thought patterns often can be dealt with by working on thinking positively or differently too. I dont get panic attacks anymore as I learnt to stop them in their tracks by using my thoughts (eg visualisation along with breathing).
" They seem to think that we can reprogram our way of thinking."
agree… thou it wont work with all mental illnesses and it wont cure CFS either… thou can help emotionally some.
Right now I are not depressed thou, just shit scared (and frustrated) about stuff and the CFS. Scared about how my finances currently are, (I cant even afford my medications or all the food I want and are driving an unregistered car etc etc cause of it), and the fact I may not be getting any money soon.
So I really think that my current fears are a valid thought as the gov. dept who gives me money has already made that threat to me several times. They ARE telling me my money will be cut off if I dont get accepted onto disability. Changing my frame of thinking, isnt currently going to put food on my table! And its cause people trivialise this illness, many dont realise just how bad it is for some so hence my jumping up and down at the moment in frustration about it all. (I will let go of it all soon, I dont hang onto my emotions).
“That she can over come these disabilities if she changed her thinking into a more positive “I CAN DO IT” frame.”
But I cant overcome this with thinking “I can do it”. Correctly diagnosed CFS isnt like that, excertion worsens the condition. When I think like that only backfires for me with this illness… I wish it was just that easy as me going and doing something… but the after affects when I do that are extremely severe in my case. I go into body shakes and tics and actual physical collapses with weakness and all my neurological system then goes like shorting out as well, I go into seizure like eposides…(I loose my body feelings and my body senses). So No I just cant say to myself “just do it” and then end up completely incapitated afterwards cause I did it.
I did that convincing myself in the past and that is how I originally ended up bedridden most of 9 mths. I was lucky not to die as I was too weak to even eat at times and almost paralysed. (I struggled to just move a finger at times and couldnt chew properly so would end up almost choking). Its over estimating my capabilities, with this illness, which has caused me severe relapses and is highly “dangerous” for me to do. So its completely different than a mental problem where they do something and dont go suffering severe consequencees of it.
Im not saying its dangerous for me due to negative thinking. Im saying that as Ive seen the impact me pushing myself has had on my body in the past… and I know others who have been paralysed and are now completely bedridden out of that.
Do you realise that CFS can kill people?? and has done so for quite a few who “just did it” and got told that?? (im refering to ones who ended up dying with this cause another made them over excert themselves and hence caused serious relapses and death).
“Even on my last psych. visit my Dr. wanted me to say a praise each morning in the mirror about who much I love and cherris myself.”
nods… that is a great exercise. I used to teach and teach others self love exercises and that is one of the exercises I used to get my students to do. One should include a smile in the mirror during that praise… and smile at your heart (visualise and feel it) and let your heart respond back too.
" I barely got depressed this time. But I so fear the next one because it took all my strength to fight this one. "
nods yeah… I know that one only too well. One can block the pain some with thinking and positive emotions but doing that takes a heap of effort and is hard when the pain is real… so just ends up draining one. It isnt something one can keep up. When one then ends up crashing… one only crashes even harder.
"She was very upset for a few weeks and last week was the first time she ever got up to go to a job in 10 years. Its only temp. but this is a BIG accomplishment for her. "
That must of been such a great occassion for you both