Hello all, I’m new here. I was just wondering if any of you are if you know of anyone one who has children with JMML and Noonan Syndrome.
Nikki
Nikki,
I do. Her name is Beth. This is her sons webpage http://www.caringbridge.org/pa/zack/ We belong to what is called the Noonan Syndrome support group. I suggest you join there’s alot more people with NS on this then at careplace. HTH
TALK TO PEOPLE WHO ARE MOST AFFECTED BY NOONAN SYNDROME We operate a list service (discussion forum). If you would like to subscribe, and be a part of our family, send an
e-mail to listserv@home.ease.lsoft.com with only the following command in the message body:
subscribe noonan-syndrome
Sincerely,
Katie mom w/NS to 2 kids w/NS andnowtheres2@yahoo.com
dillybar noonan-cpt6335@lists.careplace.com wrote: