Just diagnosed

Diabetes Insipidus
#1

Hi I’ve just be diagnosed with Cranial DI and have been given a nasal spray. Had MRI scan and they say idopathic.

But this is all in the developing world.

The spray removes the sympoms of thirst and urination etc but since I started it three weeks ago I’ve been getting headaches and feeling fatigued and flu-like.

Is this to be expected? Will it go away?

Not been to outpatients yet.

Is there anything else I can do to alleviate the symtoms?

Any advise would be greatly appreciated.

Kind regards,

IMthirsty-

#2

Hi,

Maybe you take a bit too much of the spray. I have DI and take tablets. When I have my period I have headaches and feel exhausted, and those days I hardly drink. So I now take less of the tablets during my period and the headaches are gone!

Liesielies

#3

Hello! I have neurogenic DI and I take 2-3 DDAVP a day. I notice that I need more about week before my period. Some days I feel much thirstier.I have been having aches and pains as if I have the flu and was wondering if the DDAVP could possibly be the cause. It seems to have very few side effects according to the inserts from the pharmacy. Kimbo46

#4

hi i am sorry to hear about you cdi, i too have it, and since i started with my symptoms, i get headaches pretty often, i would suggest that you take vitamins, the spray ddavp works best for me.
i was dizzy too, but once i was on the meds for a while i felt much better, i also vomitted alot, are you too?
please write back i would like to share this with you.
di

#5

I also get a lot of migraine headaches, but I have put this off on a lot of other things. I haven’t really thought about the medicine causing this so that is interesting to hear that so many others have headaches. I take the pill, but to be honest I don’t notice that I get them any certain time of the month in particular.