Does anyone have any lipomas that don’t hurt? I am curious because I have one on my right forearm and 2 really huge ones on my left forearm and they have never ever hurt. I think that is odd since I can get a pea sized one on my leg and it will hurt like ‘you know what’ while the huge ones on my arms never have hurt.
I’ve noticed that my large softer ones don’t hurt or not as much as the pea-to grape size hard ones.
This support group has been so wonderful for me. If and when I ever get a diagnosis it will be nice to be here for the next person who needs help 
Hang in there SuRi and let us know what you find out. I heard “they are just lipomas” more than enough in trying to find out what was going on!
Oh yes, I have many lipomas that never hurt, some that only hurt when pressure is applied, and others that burn, sting and ache almost constantly. I don’t know for sure, but I suspect some of us have a combination of DD and other forms of lipomatosis like FML and Madelungs. Those of us with a “buffalo hump” probably have some Madelungs at work too. Drat!
Hugs and spoons,
Pamela
Thanks for replying, I feel normal now… LOL, normal with DD anyway.
I will call you eventually Christine, I have to get over my shyness. I am really a shy person. I don’t have any friends except online. I need to work on being more extroverted in real life. (not that online stuff isn’t real, haha, but you know what I mean)
I am excited and nervous about my neurologist appointment tomorrow. I have a lot of pages printed out and am ready to be strong (I will not let another doctor tell me lipomas don’t hurt! Grrrrrrrrrr) Thanks to all of you here I feel confident and ready (armed with information)
The smaller pea sized ones hurt me much more than the larger softer ones. Those don’t really hurt unless somehow they get hit or smashed.
Hugs,
Brennie
I am covered with lipomas. Not all of mine hurt. I have so many that run up my arms and not all of them are bothersome. I also have some of them that are on legs that don’t bother me.
Suri,
do you still have my number for mdjunction? Give me a call.
hugs.
Christine
Ditto for me…Thank goodness the ones on my face dont hurt …they do itch though…
Suri, good luck with your Dr appointment tomorrow. Seeing a new doc is always scarey. I know it is for me. I have had good and bad experiences, so my prayers will be with you.
I used to be a really shy person and when it comes to talking about myself and DD I still am. It is so much easier online than in real person. But it will get easier for you.
Hugs,
Brennie
Yep, Suri, we all started out asking questions and needing help. After a while, some of us mainly stick around to help out the new members. It is a good feeling.
Hugs,
Pamela
You said it Pam. I want to help others. Sometimes I think that I should not reveal how bad my DD has become but I want to make it clear to everyone that every case is different and mine is complicated by my rheumatism and arthritis and bursitis. Also, I am very old and it only got to this unbearable stage after age 60. Suri…Be sure and take contact info for Dr. Herbst for your appointment tomorrow. Also on the subject of Careplace friends…I don’t feel that I can talk about DD to anyone except my Careplace friends. I tell it like it is to these fine women. I know my kids do not want to hear it. I feel that I have a real friendship with some of you and I care about all of you. It is great to have friends to talk to about this horrible disease and I bless each of you. Hugs, Grandma Sylvia
That used to be the case for me, but lately the bug, soft squishy ones are terribly painful, especially on the backs of my knees and on my thighs and calves.
Hugs,
pamela
I haven’t figured that out myself! You can check out Dr Herbst’s website at www.lipomdoc.org
She has a section on Madelungs too. The apron is very typical with DD. It forms because of the weight of the tumors and fluids.
Hugs,
Pamela
Bev…it sounds like you could be my twin! I also have the hanging flab from my upper arms and my belly sags and my boobs lie on my stomach. I have to wear really long tops to try and hide the hanging fat. I have to go to a new PT tomorrow and it is always embarrassing to put on a swim suit but I have to get in the warm water or quit trying to move at all. It is funny how the fat hangs like a deflated balloon and you lost weight when you have only gained weight. I just hate to look like such a sloppy fat person. I look in the mirror and am appalled at what I see. What happened to me? Who is that woman in the mirror with all that loose fat hanging on her? I eat less all the time but must eat a little with my insulin. Even when my blood sugar is good…which it is right now…I still keep gaining weight. Where has the real me gone? Lost in DD land I guess! Inside every fat woman is a thin woman screaming to get out! Hugs, Grandma Sylvia
Yes, Sylvia, that’s what keeps us veterans on the groups. Helping others is also very therapeutic.
Hugs and spoons,
Pamela
Hi all, I wonder if the large ones don’t hurt as much because there is more of them near the surface further away from the nerve as the small ones are just developing on the nerve or near it and would hurt more if touched…I was wondering if in Madelungs you tend to have fatty underarms you know like when you wave you might as well be a flag!!! Also the breast sag and the abdomen hangs down sorta…I also have these besides the hump which is really painful esp. here on the computer and when lying in bed etc. I too have Degenerative Disc in my neck C-5/ C-6 and in the lumbar L-4/L-5 which add to the pain, I just turned 60…I have never indulged in alcohol but I understand it may be a problem with Madelungs patients?? I never smoked either…what happens if you do have a combo of Madelungs and DD…? Ok, I’m done, love to you all…we are good company for each other. Talk to you all again soon. Bev
I agree… helping others is therapudic… plus, just being in the company of others who have so much in common is nice. I don’t have that “All Alone” feeling I had before I found this support group.
I didn’t have the flab on my belly until my hysterectomy… now there is a flab hanging over the scar. I would think the doctors who do this operation would give you the option to go ahead and do a tummy tuck!
I also look in the mirror and think “who is that woman?” LOL! I really hate that our bathroom has a HUGE mirror over the vanity… when I take a shower and open the curtain to get out I am always greeted with an entire body reflection in that darn mirror!
Thanks for wishing me good luck with the doc today… I have a fun filled week ahead with doctors! Today a neurologist, tomorrow a new family doc and then the next day with a gasteronologist! What fun!!! LOL!
I developed my “apron” after my hysterectomy too. I had a pooch but after the surgery it got huge and now I have the pendolus flap of disgusting skin. Could it be that when they fill our stomachs with the gas they use to see inside of us, that the dr stretches us out to the point that it won’t return to normal? Does that make sense to anyone else?