Thank you so much for responding. I have felt so alone with this as I do
not know anyone who has experienced what I have. My friends are supportive and
my family but not one of them can really know the pain of this disease or
condition. I will be happy to join the support group. What kind of surgeries
did you have because my doctor (vulvologist) wants to do a vaginal
enhancement surgery replacing the tissue in the vagina but all other Drs are telling me
not to do it. The burning may go but the spasming will not. I don’t know
what to do and I heard it is a long recuperation. I would love to hear about
what you have done.
Looking forward to hearing from you.
In a message dated 4/7/2008 9:30:21 P.M. Pacific Standard Time,
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Thank you so much for writing!
Wow, what a nightmare you’ve been thru. I hope Friday’s appointment brings
some relief. I’ve been suffering for 3 yrs and have had two surgeries (not
I’m sorry to say that we don’t know of any groups in your area - if you’d
like join our online support group we would love to have you! You can email us
at email@example.com or do a Yahoo Groups search for Vulvar Vestibulitis
and you’ll find NVVO. The next best thing to a face-to-face group is an
online group! We have women from all different backgrounds and age groups and
life situations and diagnoses.
But either way, I would love to keep in touch to know how you are doing.
Wishing and sending you strong supportive positive vagina vibes…
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