OK so I’m starting a new contest! The winner gets one US dollar $
Yeah !
So the contest is who has survived the most number of years with Primary Polycythemia rubra vera ?
I myself have lived at least 16 yrs with this disease. Who can top that ??
Best,
Robert England
YOUR INFORMATION IS ENCOURAGING. I WAS DIAGNOISED IN 2003. I AM SIXTY SIX. PUG
i developed polycythemia when i was 423 years old i am now 65 and 1/2 years old had my spleen removed 2 years ago and i am still going strong wi9t whites reds and platelets elevated in fact the platelets are now at 1 and 1/2 million Lil
You give hope to all of us newbies to the world of PV!!! My husband was diagnosed last year and the first few months were very scary (he was 36 when it was found). His mom was diagnosed in 1995 and is still going strong so we know it is possible to live with this condition.
-------------- Original message from Miss Lil polycythemia-vera-cpt7079@lists.careplace.com: --------------