This sucks so much and I was really hoping to have satistics on our side, but it looks like my newborn has HD as well.
My 1st born was from another father, so I was hoping that things woul dbe different, but 17 yrs later I find my self w/ a new born that is not pooping and is throwing up his feeds. He was admitted to NICU @24 hrs old.
The only good thing is this time the doctors had a clue of what could be going on. If I did not already have one child with HD I know for a fact that Max would not have been given a biopsy this soon/ (the surgeon was 1st thinking it was cystic fibrosis (sp?) eventhough I said I had tested Neg w/ they did the prenatal testing) They gave Max a barium test and it was neg, but I told that my 1st born passed that test too, so we needed to do the biopsy. They had to coordinate w/ another hospital to get the “gun” they use for the test.
then max’s belly started sounding better after the barium test made him pass some poo, so they started him of food again and he was doing well, until last night (he turned a wk old last night)
The results are not 100 % complete, but leaning towards HD, big surprise.
I can’t believe it I did this to another child. I knew there could be a chance, but really was thinking that the chances were low, not too many families have 2 children w/ HD.
At least Max will not go misdiagnosis for so long like Michael did, and it sounds like they could do a pull through, that was not even an option back then for Michael, I don’t believe they were doing that surgery 17 yrs ago.
this just sucks so much. I was hoping to be able to come to this sight and tell families look…I had a 2nd child and he was HD free and give hope to others that were fearfull of going through this for a 2nd time.