I have had DI for 2 1/2 years.
My husband and I decided to try for another baby as our older children are 9 and 10 years old (immediate conceptions) and we were now clucky again. We are both healthy and early 30’s but for the last 18 months we have had no success and we have tried lots of ideas but decided we must be infertile, has anybody also had this problem??? Would love to hear back from you.
I have DI for 37 years now (when I was 9 months I started to drink a lot). When I was 30 years old, we wanted to have a baby and immediately I was pregnant. Two years later, we wanted to have another baby. Again I was immediately pregnant. So I don’t think it has anything to do with DI.
Hi-Della, I had DI during pregnancy (undiagnosed) and for 15 years until I was diagnosed last year. The thing is I had fertility treatments for that pregnancy and the one before that and then I had a pregnancy at 41 (almost 42) before I was diagnosed. I had a few complications and I had almost given up being diagnosed at that point. So I knew how to manage! I guess my point is that I really doubt that the problem is you DI. It is a pituitary issue, maybe you have other issues with your hormones? Have you had them checked out ? It might be a good idea to know where everything is. Good luck and God bless! Kim
Do you know what caused you to develop DI? I do not think DI in itself will cause infertility, I have the genetic form so obviously people in my family tree have been able to have children and I have 3 of my own.
BTW, my oldest is 9 and youngest is 17 months… lots of fun with the little one around! Good luck with a third and at least have fun trying 
To: masmiseim666@hotmail.com
From: diabetes-insipidus-cpt8163@lists.careplace.com
Subject: [diabetes-insipidus] loss of fertility!!!
Date: Fri, 21 Mar 2008 08:05:41 -0400
I have had DI since birth i have gotten pregnant twice in my whole life (I am 45yrsold) and misscarried both times i was told i had cystic ovarian disease and very low female hormones
dont know if this is related to the DI or not.
Hi Della,
There’s no connection between DI and fertility, but whatever caused your DI may also have affected other parts of your pituitary, although the vast majority of causes don’t do this. (I’ve had DI since 12, and got pregnant the first month I tried at 37.)
Do you have ‘regular’ menstrual cycles?
Do you know what caused your DI?
As Kim says, some pituitary tests will show if there is a problem. If you’re seeing an endocrinologist they will hopefully be sympathetic to your requests for tests, given how long you’ve been trying and how young you are.
Della diabetes-insipidus-cpt8163@lists.careplace.com wrote:
My own DI was caused by pituitary damage. At one point, a Dr. of mine
mentioned I probably couldn’t have kids, as the DDAVP needs, tied in to two other
hormones, and one of them affected pregnancy. So I went to a specialist, and he
ran a lot of tests, even though I wasn’t trying to get pregnant then. I’m just
an info. whore and I wanted to know my options.
So, at that time I was 34. I am now 37, and still haven’t tried to get
pregnant. However, my fertility specialist doctor said the hormone I was low on
would simply need to be synthetically replaced when I wanted to get preggers,
through a shot or what have you.
So, I second what everyone else is saying, and suggest you get a thorough
endocrine checkup. Also, now that you are older, it does take longer. My sis and
best friend are 39, and 43, respectively, and they both were trying four-five
years before they recently both had their first children.
Best wishes,
Stephanie
Create a Home Theater Like the Pros. Watch the video
on AOL Home.
(http://home.aol.com/diy/home-improvement-eric-stromer?video=15?ncid=aolhom00030000000001)
Dear friend, as what our fellow friends suggested, perhaps you want to see the endo and get their opinion.
I am Panhypopit. Panhypopituitary means the body no longer produce all hormones needed by the body (or insufficient). In some cases, the pituitary stops producing hormones gradually, one hormone after another.
In my case, it started with ADH which caused the DI, few years later the TSH which stimulates thyroid hormone levels, followed by ACTH which stimulates the adrenal, then FSH which affects the production of egg. The endo told me that I am not able to get pregnant anymore unless I want to take the hormone replacement for pregnancy. Being a Panhypopit, the endos was not in favour when I requested to get pregnant. In your case, it could be different. The endo should be able to help you. Take care.
Thanks everyone for your information…very interesting for sure. I remember my GP saying that she could give me the hormone replacment medicide as that part may not be working in my pitutary gland, but I said I wanted to see how I went naturally and wondered later if it was my DI but I can see now it would be my gland or age in general.
Will ask my GP a few questions and the Endoconoligist next, especially since I understand more about what I can ask…(medical specialists can intimidate so easily).
Thankyou, Hope you all have a good Easter 
*Endocrinologist (sorry about the last spelling, didn’t have spell check
At 30 I can’t imagine your age is contributing much.
Re the intimidation by medical specialists: I suffered this for a long time, having been around doctors since I was 12 (back in the late sixties) because the doctors were considered Gods then. Some of them still act that way. In order to counter any hangover from this, whenever I see them I just quietly remind myself that I’m paying the bills: I’m the CUSTOMER. Doesn’t mean good manners don’t still apply, but that works both ways. If I’m seeing someone new, I ask how long the appointment is for. Don’t know what happens in America, but in Australia they never actually tell you know long they’re allowing, making you nervous if you feel you’re taking up too much of their valuable time. Be aware of what the time is when get to see the doctor; even if they’re running late (which is, understandably, sometimes completely unavoidable) you’re entitled to your time. Some of these tricks can help you feel less nervous, which in turn means you get your message across
better.
One specialist I have been seeing for nearly 18 years apologised for being 10 mins late in the early days; when I expressed surprise, he said ‘I’m not going to assume your time is less valuable than mine’; I nearly fell out of my chair. When I commented to him that my GP was often an hour late he just said ‘some people were late for kindergarten’.
If you have got more widespread pituitary damage than just to ADH production, just be aware that oxytocin (the only other hormone from the posterior pit.) is needed for (natural) birth and the let down for breastfeeding (but can be giving artificially for both), and prolactin (from the ant. pit) is essential for breastfeeding.
If you want to email me I can email back a great article about the pituitary and its functions - easy to follow.
I find the more infomation I have the less likely I am to be fobbed off.
My email is maureen v (at) bigpond (dot) net (dot) au
regards, Maureen.
Della diabetes-insipidus-cpt8163@lists.careplace.com wrote: