does anyone know how to check the amount of choline in various foods?
has anyone got any nice low choline recipes?
If you Google choline in foods you will see a web site for USDA, and there
is a breakdown for choline in most food groups.
If you have this disorder than try googling yahoo for a support group on it. The diet and everything is in there. It is private and you have to apply so you won’t find the info unless you do.
I tried to get into that group and they denied me can you copy and past
Hello Everyone,
On the MSN Body Odor Support Group, and also on the Yahoo Trimethylaminuria Group, there is some information on diet, and there are also some recipes as well. They are now starting to be collected because Linda is getting the recipes for her TMAU cookbook.
Here is the link to the Body Odor Support Group:
http://groups.msn.com/bodyodorsupport/_whatsnew.msnw The recipes are in the diet/recipes section. The forum is run by Arun, a medical scientist, who is working so hard on his research for our conditions, Cabel a loving father who brought us the fortnightly conference calls. (I joined a conference call on the weekend, it was really great to be able to talk to other people that suffer from TMAU, Body Odor and Halitosis,) Ben our scientific advisor, and Tisha, a wonderful, positive person who is really lovely. She always makes me smile, and she is such an inspiration. She is always there if you need her.
Here is the link to the Yahoo Trimethylaminuria group: http://health.groups.yahoo.com/group/Trimethylaminuria
Sharon runs this group, and she is a wonderful person who knows a lot about testing for TMAU. You will also get a lot of support from the wonderful people here as well.
There is also a very good Trimethylaminuria forum on Curezone. I haven’t spent as much time on there, but it is a very good health website for TMAU, Body Odor and Halitosis, and there are other forums for other medical conditions as well. The information on there is so helpful. Tisha is a member of the forum as well, and will help you with any questions you may have.
Here is the link: http://www.curezone.com/forums/f.asp?f=441
You do have to apply to get into these groups, but it is worth it. The people in the support groups are wonderful people, and you will get a lot of help, advice, and support, just like I did.
I will also give you a link to Maria’s Blog on Bloodborne Body Odor and Halitosis - Uniting Sufferers and Experts. It is a wonderful, helpful blog that gives you information about testing, possible causes, and testing. http://www.bloodbornebodyodorandhalitosis.com
She is also starting her own charity corporation in the U.S, to raise awareness of TMAU, Body Odor and Halitosis, to raise money, get funding to help us to be able to afford to get the testing that we need, and help researchers learn more about our condition/s. She is such a wonderful person, that is working so hard to help us. Maria usually helps out on all of the forums that I have mentioned, so she is always there if you need her.
There is support for us out there. No-one here needs to feel like they are alone with this. This group is wonderful, and I happy to be a member, and I am glad to see that people in this group are sending each other messages of hope, advice, and supporting each other. I hope it continues.
I am always here if anyone needs any help. Send me a PM, you can ask me anything, and I will try and help you if I can.
Kristen.