Members

1p36 Deletion Syndrome
#1

I am just wondering if the members of this group are all members of the yahoo group as well??

#2

Yes, we are members of the yahoo group and the 1p36.com message board.
Carmela

#3

Where is the yahoo group? What is the address?

Does anyone know who is doing research on this syndrome?

#4

http://health.groups.yahoo.com/group/1p36_Deletion_Syndrome/
is the address. You have to join to have access. PLease let me know who you are when you join. We don’t have it open to the public.

Lisa Shaffer is the doctor doing the research in the US.