Hello everyone this is Dolores and Jacob is my son with menkes syndrome. He is 8 years old now going on 9 in Augs. Just wanted to say hi to everyone.
i my name is patricia manningi had two boys with this disease will you call me im at the library i have to go now 864-249-0451 or 864-270-7016 i need to talk to someone about this or if you call i can call you back thankyou i will be back tomorrow call are e.mail me back.
Hey! I got your email this evening. My son had Menkes. My phone number is 908 797 1701. Feel free to call me. I don’t know how much help I can be. You have found a good group. These people will answer any questions you have, and give you support. If you want you can call me, too.
Take care…
Kathleen
----- Original Message ----
From: ckn menkes-cpt3553@lists.careplace.com
To: calybrid@yahoo.com
Sent: Tuesday, October 2, 2007 5:52:21 PM
Subject: Re: [menkes] Menkes Syndrome
At 02:52 PM 10/2/2007, you wrote:
To: rcrdcoronado@hotmail.com> From: menkes-cpt3553@lists.careplace.com> Subject: Re: [menkes] Menkes Syndrome> Date: Tue, 2 Oct 2007 18:06:16 -0400> >