Menkes Syndrome

Hi this is Jacob Quast mom and just to let everyone know that Jacob was in the hospital for a hole month and 2 days. His left lung had collapsed and we almost lost him that same night. He went though alot and now look at him back home. We still need alot of work with him getting back to hisself. We had to put a trachea on so we could have him for a long time. We will see how things go.