Hi to all my Friends and fellow Careplace supporters, I want to fill you all in with what has been happening in my home and life. So I will start with saying THANK YOU ALL for the hugs and best wishes.
Starting in Sept. of this year: my husband had to have major surgery on his colon, he was told he had Diverticulitis, one being the size of a Softball, yes large, plus alot of small ones removed. His stay was 5 days but should of been 5-10 days in patient.
Well the nurses told him that he could come home, since his wife could take care of him “yeah right” not knowing how sick I am they did let him come home. Well this is when everything seemed to go down hill for US.
I got very sick with CP pain, and CL pain with lots of blood loss. Then I have been seeing a Oncologist for what they thought was Cancer, Leukmia or bone, so I went through a bone marrow and bone biobsy plus a full body scan looking for cancer, god bless they came back negative, then the end of Sept.
I was told I have Autoimmune disease, blood disorder, and Very low platelet counts, for those of you who are not aware what the platletes do they help clot your blood, and fight infections. So to say normal plateletes are done in numbers Normal 140,000 to 450,000, mine were only 60,000 in the beginning, dropping quickly to 20,000 “Danger Zone” so I was to go have a blood transfusion called IVIG treatments for 5 straight days. I made it through all of that, coming out with platelet count of 105,000 still low but much much better.
One week later went for Labs and I dropped again to 70,000 so I went every week for Labs, and come the first of Oct. my level dropped to 17,000 so I was back in for another Blood Transfusion the regular blood platelet transfusion. Of course I got 10 units and felt so much better, well a month later they were on the fall again, so in I went for another transfusion, costing around $30,000 per transfusion "thanks for ins. they have paid almost all of it!
So come the middle of Oct. we got bad news again, we had lost an Aunt to Leukmia this in turn made my whole family worried about my test. the the end of Oct. we lost an Uncle to colon cancer so that was a scary thing for my husband. Take a breath this is only the beginning of our life starting in Sept. keep in mind. Nov. deaths in the family were becoming a every two week thing, buried 6 relatives, then found out that my mother has breast cancer and went through 2 surgeries in less then two weeks.
She is cancer free for now, and will start treatment after she is healed up in 3 spots from the surgeries! To say the least this took it’s toll on me, I become very sick where I should have went to ER, but refuse I feel I can do the same thing here at home as they can do there, I didn’t have time as my mother needed me despritely and I wasn’t turning my back or health on her she needed me.
Here we are in Nov. and have another death in the family “husband side again” so we get through that then there is Thanksgiving well I couldn’t eat as my stomach could not handle anymore depressing news. I have ran my mother to all of here appts. as my siblings think I don’t work so I can do it ALL. I finally talk to my Aunt and she said something to them about pitching in and to get off the pot and help me, well that lasted about 2 weeks of course I was sick again and could not do it suprise huh!
Ok now Dec. my mothers doctor found another spot on her breast and yes cancer is back, so we get through this one again and get new appts. for her with the Radiology and Oncology doctors and run her to all of those appts. yes ME, and ended up down and very sick this time, I was so upset because my husbands x-mas party was the next day and it was his 20th year Annv. nope didn’t get to go.
The following weekend was our Family x-mas gathering and seems no one can get along, I finally said we see each other once maybe twice in a year do you think we could pulled together for one time??? I also told them I am Still very sick and don’t take days for granted or even hours, so if they want to think about me not being around maybe next year, then poor Barbie, whatever I don’t want that feeling of feeling sorry for me so told them all and left.
Then the next weekend only a few of my brothers and sister talk to my mother past issues, get together for x-mas and finally it was so nice to feel comfortable and relaxed, my family has a alcohol problem and my oldest brother is looking quite wore out, so he talk to me about all my issues and I just found out he is staying with my sister to get off of the booze and get help. “his wife is syco” and needs to be instatuted that won’t happen!
but maybe he can get away from her and get on the wagon again. Lets Pray he Does!!! anyway back to Dec. now we are at the end of the month thinking this year might go out quite, not we got a call the 22nd and Jr.s (husband) uncle went off the road into a ditch, had a major stroke took him to the Hosp. where he only made it one week, so being our favorite Uncle we had yet one more funeral to attend! It is now Dec. 30th and I got the Flu from somewhere and having flare ups with my Cp/Cl I really hope that this new year brings calm happy times our way lord knows we need that so very badly…I will end my letter to you all, by saying I am so Sorry for not being there for all of you in your times of need…
I have tried to be a good friend and check in from time to time, but as you all read this maybe you all can understand, so as I close I hope you all have a very very Happy New Year bring us all Good Health and more Pain free days/nights.
In the New Year I will be on checking in regularly assuming all is going to be better with the New Year…I want to Send out Lots of Thank Yous for all the hugs and prayers and Support…I want to send you all my love and prayers for more healthy day and nights this is to All on Careplace regardless of what disease WE have. I hope this new year will bring more people/Friends to careplace and that WE don’t forget to send thoughts, prayers and support to all of our Friends.
With Love Always, MrsBarb, AKA-Barb 
I live in Lincoln, Nebraska, you had Lincoln, Nevada-It did get to me thank goodness it wasn’t returned. Again that just made me laugh is all so wanted you to know that…So change my address to: 5439 West Walker Ave. Lincoln, Nebraska 68524 oh not the address just Town and City-LOL Ok hon it’s getting late so i should be heading in, but I do pray that you are feeling better today/this evening…Love you too…
but today I went and picked up Lady girls ashes and it was like she knew she was in that box, I put it up high cause I don’t want her to get the scent if there is any??? first time for me to go through this who knows…Ok hope your having a pain free evening and also a Big Thanks for the Laugh tonight…Oh one more thing I went to the doctor monday and he put me on 1000mg. of antibiotic for a staff (can’t spell