My MS Story


#1

Hi,

My name is Rebeka. I’m 22 and was diagnosed 2 years ago with multiple sclerosis. I had a pretty rough time for my first year and a half, having relapses every couple of months. It’s been six months now since I’ve had a relapse…so i’m happy about that.

I just became a mom to a beautiful 2 year old baby girl. I’m unable to work outside the home, but my baby girl keeps me busy.

I also just finished work on my first book. It’s over Multiple Sclerosis. I’m starting work on my second book, it’s over lupus. They are both a collection of stories from people who deal with these diseases! And stories from friends and family members.

So i just wanted to say hi! Hope everyone is doing well.


#2

I relapsing remitting MS. Thanks


#3

What are, or have been your symptoms? How many times a year do you have an exacerbation? Do you get hospitalized when you do have one?


#4

I have had relapses about every 3 months!! I have only been hospitalized for one, thank goodness…i have had out patient steroids for all of the others. My symptoms include (there’s a ton, but these are my main ones) dizziness, trouble keeping my balance, fatigue, bladder control issues, and muscle spasms.

What kind of issues have you had? I try not to take anything other than my betaseron, but occasionally i have to take muscle relaxers so i can sleep at night? Do you have to take any medication for your symptoms?


#5

My symptoms started after an allergic reaction to Allergy shots of all things August 15th 2006. My throat closed and Ihad to get an epi shot and prenizone 70mg. In November I had an attack of dizziness, weakness and numbness on my right side and left lip. I have vision that blurs and looses color when I am over heated. I get the MS hug a lot now. For a while my back went out, but I had 6 cortizone shots to help with that and I wear a back brace and I have physical therapy. I also wear a knee brace. It is called a J brace because my muscle will not pull my patella in the correct direction. I have cognative problems and have had neuro-psyche testing which has shown so mild dysfunction in memory and congnative skills. They also believe I have anxiety and some depression. I am on muscle relaxants (not often), lunesta to sleep, xanex .25 for the anxiety and I take meds for allergies, asthema, and thyroid problems. I am taking a ton of supplaments and doing yoga following the FitMS tapes. I walk with a cane, but not if I can help it.

I hope this answers your question.

Dawn