My wife is a polio survivor. After reading the Polio Paradox, she identifies with several symptoms. She would like to consult with a doctor that is familiar with this conditions. Is there a directory of such physicians that specialize in treating and consulting with post- polio patients?
HI ronp
If your wife see her family Dr. I am sure she can be directed to a Post polio who specializes in this area . Depends where you live also.
I too am Polio Survivor and have pain in my leg and arms most of the time. One of the inportant things to do is to recharge our batteries and rest and not to over do things that wear us out. Remembering that a person who walks a mile may rest for 20 minutes ,but Polio Survivor must rest longer could take hour or more to regain our energy.
Its always nice to hear from others and to share what we know.
Have a great day.
Purrduck
Good Old Toronto City!
Ronp,
You can find almost any information you need at the websites below. We live in Texas, but my wife sees a polio doctor in Joplin, Mo. They are far and few between, but PPS medical professionals, doctors, hospitals, clinics,
rehab centers, support groups and other PPS organizations
can be found at
Hope this helps.
I too am a polio survivor and now have post polio syndrome. I
see a doctor in Lima, Ohio got her name off the polio connection site. I have learned to pace my activities by limiting what I do without resting.
Try this site www.postpolio.org or go on google search for polio connection site I can’t remember it could be www.postpolioconnection.com.
Hope this helps.
Deannie
Thank you so much for responding. My AOL put all the response I got in spam
so I did not find them for some time. Thank you again.
Mary
************************************** See what’s free at http://www.aol.com.
Thank you so much for your response. I am sorry it took me so long to write
back. My AOL sorted my mail and put all the response in spam. I did not look
at that for some time. I had polio in 1952 and was told that I have PPS in
the 80’s. I was not having any muscle atrophy then and the could not tell how
much of my problem was from PPS or from my back surgery. I did pretty good
until the last 4 or 5 years. At long last I had more test done and gee it is
PPS.I am currently looking for a pain clinic that is knowledgeable about PPS to
see if there is any other meds that may help. I am on Demerol now every day,
and they are thinking about adding something else. I have other problems too
and take 14 pills every morning,I feel like a pill,.I was trying to find the
clinic I went to before but have been unable to locate it.
Thank you again,
Mary
************************************** See what’s free at http://www.aol.com.
Hi,
So good to hear from you. I don’t know if this will help but I take Elavil
it helps me a lot for relaxation and sleeping. My legs want to shake at
night well they don’t visibly shake but on the inside they tell me. It
works for me and also for another polio victim she has the same problem
sleeping.
I got a lot of info off the internet even different meds to help for various
needs. I had a listing I will see if I can find them and email them to you.
IF I remember correctly I may have gotten them off the polioconnetion site.
Stay in touch
Deannie
----- Original Message -----
From: “nanabear” post-polio-cpt3581@lists.careplace.com
To: BWISTERM@columbus.rr.com
Sent: Saturday, July 07, 2007 7:59 AM
Subject: Re: [post-polio] My wife is a polio survivor. After reading the
Polio…