I could use some advice. On Dec 11, 2006 my Daddy literally died in my arms after battling with FSHD.
Today 8-8-08 my best friend called to say the DNA test came back and her 6 year old son has Duchenne. I see them every day and I don’t know what to say. I don’t know what to do. I thought I would be able to handle this better because I have already been through it once but I am lost. Any thoughts?