Hi Everyone,
I am new to this group and I’m so happy to find one that all about IBC. I was diagnosed in March f last year, had 4 rounds of adriamycin & cytoxin then 4 rounds of taxol. As if the first rounds weren’t bad enough, the taxol left me neurothopy in both hands & feet. I am 9 months past taxol but the pain is still keeping me down. I’ve tried neurontin, lyrica, topomax and now I’m on elavil. This has helped a little but not enough.
Has anyone else gone through this and if so, how do you handle it? My onc says there’s no way to tell if it will ever go away…Percocet is the only thing that completely takes awa the pain but none of my doctors will prescribe it anymore and make me feel as though I’m an addict!! Help Please!
Donna