I don’t think my son has hirschsprung’s disease, but I thought someone here might have some advice for me. I’m the mother to a 2 year old boy. He passed meconium late at birth, but not too late, I think sometimes into the second day. He was breastfed exclusely for nine months and had issues with repeated mucus and blood in his stool. He was treated by GIs and an allergists for suspected milk/soy allergies and I went on an extreme elimination diet. When I started solids with him at 9 months, the true constipation began. And it got terrible at 15 months when he weaned.
He’s now two and is one huge doses of Miralax a day. At 9 months he was found to have a bit of anal stenosis (like a ring structure inside the anus). But that seems to have resolved. Now he can’t pass stool unless it’s liquid. Even very soft stool comes out in teeny tiny amounts (like bottle cap size) and that progresses into a HUGE stool that needs glycerin or an enema to come out which is very VERY painful for him. He has popped fissures after bad bouts of the constipation.
He just had a barium enema done today and it seems like atleast upper level Hirschsprung’s was ruled out. They might do some biospies lower to rule it out more in the rectum.
But my question is that he withheld the barium. The radiologist seemed concerned and surprised and my son’s GI office was also concerned. Finally two hours after the enema, he did pass some of it, but they were all surprised that he didn’t immediately go. I am convinced that whatever the reason for his inability to have a bowel movement (he can’t go unless it is diarreah) is the same reason he held in the barium.
Has anyone ever heard of something like this? I’m going to give enemas for the next few days to try to get all the barium out because they are concerned about it getting very solid if it doesn’t pass. It just seems so strange and I feel like I’m banging my head against walls with all these tests and no answers and he just can’t go.