No Subject


#1

Hi,
Thanks for the e-mail. I was examined by a endocrinologist and she did nothing. I have Cushings Syndrome which comes from many years of using prednisone.
It is the only medication that seems to keep my Retroperitoneal Fibrosis in check. I tried to reduce my prednisone but then I become so tired that it is difficult
for me to move. Does Cushings cause tiredness? Just recently, I’ve had problems sleeping - but people on prednisone usually do. I’ve gained 33 pounds and a huge pregnant-like tummy, large lumps on my neck and shoulders and a VERY fat face. I’m a mess. Do you know of a treatment for Cushings?
Very truly yours,
Linda Wagner
Scottsdale, AZ.


#2

Linda,
Cushing’s can cause tiredness. The only treatment for steroid induced
Cushing’s would be to stop or at least lower the dosage of Prednisone that you
take.

I remain with Cushing’s disease after unsuccessful pituitary surgery and
radiation. I also have another disease called Sarcoidosis. The best treatment
for Sarcoidosis is steroids…however, I can’t take steroids due to my
Cushing’s.

www.CUSH.org (http://www.CUSH.org)

Best Wishes,
Cathy

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48)


#3

Unfortunately,?you’ll continue to have these symptoms as long as you’re on the prednisone.? That’s why a lot of children have Cushing’s Syndrome for years b/c steriod asthma medication has the same effect.? There is no “cure” b/c it’s not a disease, it’s a side effect in your case.

I had Cushing’s Disease, which is caused by a tumor.? They tried to remove it, but failed.? I ended up removing my adrenal glands to “cure” it.

-----Original Message-----
From: judi24 cushings-cpt7600@lists.careplace.com
To: chleb34@aol.com
Sent: Fri, 25 Jan 2008 11:37 pm
Subject: [cushings] No Subject


#4

Hi Linda I have the same as you., Cushings Syndrome. I have Multiple
sclerosis, but received 1000 mgs of solumedrol every month for this. I too blew up
like 60 lbs in 6 months, the hump moon face, easy bruising, umong many more
things… If you would like check out my myspace page You can see pics of the
changes I went through, along with various stories and such. My Dr even sent
me to Mayo clinic, and I spent months going up there 2 rimes a month for
overnight excursions… The endo crinoligist there basically once, he re diagnosed
me, told that for our type of cushings, not much more than time will have to
take care of it… BUT, absolutely no steroids of any type, I found out the
hard way, that even ment no hydrocortisone cream!!!
Here is my myspace link. And I am slowly but surely improving, looking at
what I look like is the huge improvement… I have the extra problems of
having cushings, multiple sclerosis, a blood clot, degenerative disc disease, lol
just to name a few…

Im gearing up now for the MS walk in March, as it was a year ago that the
Cushings was diagnosed and I was in the hospital for 2 weeks… So there is
hope… Fish Oil, has helped me bunches with fatigue…

oh, the link,
www.myspace.com/bearablescents (http://www.myspace.com/bearablescents)

Hope this helps?
Cherie

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In a message dated 1/25/2008 11:37:44 P.M. Eastern Standard Time,
cushings-cpt7600@lists.careplace.com writes:

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Hi,
Thanks for the e-mail. I was examined by a endocrinologist and she did
nothing. I have Cushings Syndrome which comes from many years of using prednisone.
It is the only medication that seems to keep my Retroperitoneal Fibrosis in
check. I tried to reduce my prednisone but then I become so tired that it is
difficult
for me to move. Does Cushings cause tiredness? Just recently, I’ve had
problems
sleeping - but people on prednisone usually do. I’ve gained 33 pounds and a
huge pregnant-like tummy, large lumps on my neck and shoulders and a VERY fat
face. I’m a mess. Do you know of a treatment for Cushings?
Very truly yours,
Linda Wagner
Scottsdale, AZ.

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