If you seach your computer for either of these two organizations you will come to sites with great information. The NODCC is a non-profit orgaization that was formed only a few years ago. They hold a yearly conference for families and individuals with ACC or other disorders of the corpus callosum. They also instigate research and have professionals to help answer questions. A great resoruce!
The next site is the ACC network. This is the original network and has been running for a while now. It is housed out of the University a Maine and often helps parents gather information. They send out newsletters and information packets if you are on their mailing list.
Check them out and maybe I’ll see you in Dallas this summer. We can’t wait!