Noonans syndrome

Hi my son Johnny was dis. at birth with NS. he has had rough times and has many ahead. He was born on Aug 4th 1992, at ku med center in kansas city mo. are there any others from our area? noone else in either family has ns.
We all have awesome wonderful kids! And cute as can be… i am interested in any info you may want to share,
thank you
marsha & johnny NS