I have a daughter who has mild CP, low muscle tone, and have recently been told that her brain MRI show PVL. I know that it is damage to the white matter of the brain, but if any one has any more info, it would be greatly appreciated as I am have difficulty getting info on this. I would like to hear from others who have been down this path before. She was not a premmie baby, so the cause of the injury is not known.
My daughter has PVL, too. We have not gotten a diagnosis of CP yet. I dont have much info on PVL. My daughter’s white matter is damaged.
Melissa