Polycythemia Vera Experiences

Please share your experiences with Polycythemia Vera with the community.

I was diagnosed in 2007, and I had no symptoms. In 2011, I was pregnant. Everything was going great. I had placenta aburption and lost the baby (30 weeks along). Then I developed a DVT and PE. Every since then, I've been feeling the symptoms. My spleen cramps (it's enlarged)...aches and pains, etc

As I know, most of the PV patient have a enlarged spleen, but no aches and pains, that sounds terible.