My 3 yr old son has had a very poor appetite since having DI. I had hoped that once he settled on dDAVP it would improve. But it seems to be getting increasingly worse, even on the days when dDAVP is working well. Despite eating virtually nothing, he has way more energy than you’d expect. Have others experienced this, especially those with smaller children?
I had a very poor appetite when I first got sick. It seemed all I could do was drink and even then a lot of times I got sick. I think that my apetite finally picked up about a year later and now I am sad to say that it needs to slow back down again:) He is young and sometimes kids are just picky. I have a two year old who doesn’t have DI and he is a poor eater most of the time too. Try lots of fruits (watermelon is great) that have juice in them because that is what DI suffers crave. Also, smoothies might work well too. Anything that is full of fluids.