Thanks for your words and yes, we will always have good memories of him. There are pictures of him in our profile, not sure if you are able to see them or not.
Wilson was good with his feeding and was on milk all the time as well as some pureed meals from about 6 months onwards. He also had good days and bad days with his food/drink. Sometimes he would want more than you were giving him and others he just didn’t want to feed at all. We later found out, at about 20 months old, that he was aspirating while he was drinking, which basically means that fluids were getting onto his lungs so he had to have a gastric feeding tube fitted and was tube fed for the last two months of his life. I would urge you to go check whether Chieltje is aspirating as it can cause some very bad chest infections.
The only time Wilson ever cried was usually straight after a seizure, apart from that he was a very good baby. He went through all his hospital visits with ease.
Feel free to ask any questions you have, we know what a hard time you must be going through and its good to speak to others about it.
@Leith: Yes, Melatonin is the chemical in your brain that controls the sleep pattern. People with limited sight have a lack of it. We only found out about it late so didn’t actually pursue it.