I’ve got PV and I had some questions…
- Who hosts your board???
- What is the name of the board software that you are using???
- RU aware of any special diets for people with PV???
- I’ve looked at some other sites and they said that this disorder is not heriditary, but it does follow askinazi jews. Do you know anything about that???
- I was wondering if anyone has had experience with the following… I’ve had the red face thing, but it’s intermittent… somedays, I’m red as a beet and some days I’m not… is that typical???
- My hand burn, mostly, when I lie down at night to go to sleep… is that typical???
- I have a board for Polycythemia Vera and it has a lot less topics than this one… It is much easier to navigate… In this one I can’t tell what I’m replying to or where anything is at… anyway, it’s at http://www.mcgrew-fam.net/GOVBB/
Most Sincerely,