I was a member of the yahoo AIHA group and noticed a link to Careplace. I thought I would check it out but noticed that the board hasn’t been very active since July. Perhaps everyone is feeling better?
My story: I was dx’d with AIHA in October 2003, did the Prednisone thing for most of the next year. In July 2004 my hemo gave me 4 rounds of Retuxin which bumped me into remission.
I’m no longer in remission…waiting on a blood test result tomorrow for sure, but I can tell it’s back. You know: racing pulse, tea-coloured urine, thudding head, etc…
I was wondering for those of you with relapsing AIHA, did you go back on prednisone with the relapse and does it work? As well, anyone who had the Retux treatment, if you relapsed, have you had another round of treatments?
I am not happy about this starting up again…brings back very bad memories.
Thanks in advance
(On a happier note, I very much wanted to start a family before the first time with AIHA, and I had a son in July 2006…a bit of hope for anyone struggling with this awful disease).