My son was diagnosed with HD in late April when he was 5 mos. old. The HD diagnosis was made when we brought him to the emergency room with a very serious case of enterocolitis (in fact he was very near death). Fortunately we had a fantastic team of Dr.s who suspected Hirschsprung’s within minutes of hearing us describe his history of constipation since birth. The diagnosis was confirmed through biopsies taken during an emergency surgery. Approximately 4 inches of his colon was removed and he now has a colostomy.
This brings me to my question. The surgeon treating my son has led us to believe that after the pull thru (currently planned for early October) he should have no residual problems from the HD or removal of his colon whatsoever, other than perhaps a nasty diaper rash for a short time after surgery. But based on the messages posted here it sounds like there are many potential side effects including lack of bowel control that are very common with HD. Has anyone here had a successful pull thru with no long term HD side effects? I’m not sure that it is relevant, but with the colostomy he shows no signs of constipation or diarrhea at all.
Please let me know what your experience has been with side effects following pull thru surgery. What questions should I be asking our surgeon prior to pull thru?