I have Sjogrens and wish to talk to others with this condition. Who knows I might learn what helps others might help myself.
I have Sjogren’s Syndrome and alot of the related diseases and symptoms that stem from it. I don’t personally know another person who has it and would like to compare notes, as it were.
I have had xerostomia for about a year, but instead of my mouth being dry it is constantly filled with thick slime from the maxillary glands. Does anyone out there share this problem and have anything they have found helpful to suggest?
Have been diagnosed for 4 years & want to know as much as I can about this disease. Also how others are coping with it.
Just need more information
I was recently diagnosed and want to learn all I can. I also want to meet others with Sjogren’s since no one I know lives with chronic illness and can relate to what I’m going through and will go through in the future.
would like to know more about this b/c i’ll have it all my life
My name is Jaime.I was diagnosed with sjogren’s in 2001, the summer after getting married in March. I would like to chat with other people that have the disease.
Hi, sjogren syndrome family:
I would like to communicate with other sufferers of this syndrome. I was diagnosed over two years ago but have experienced its effects for some time.
I have been informed by my rheumatologist regarding my symptoms that I may be in the beginning stages of Sjogren’s Syndrome. My chronic dry eyes are horrible even with my recent punctal thermal occlusion, Restasis drops, Lacrisert, liquid tears and antibiotic therapy. I also have severe basal joint arthritis in both thumbs with upcoming right joint replacement. Also deal with some dryness of the mouth and female area.
I am a 52 year-old mom and grandmother of our sweet granddaughter, CAli, soon to be 4 years old.
I would like to connect with people living with similar problems.
Thanks.
Valerie
Hi!
I was dx’d with Sjogrens about 3 + years ago. I have other autoimmune diseases also. They seem to find me, LOL.
The Sjogrens runs in episodes of flares and no flares. Unfortunately lately I’m in a really long flare. I too have punctal plugs, use Restasis, artificial tears, gel and can’t get relief from the dry eyes.
I have other issues with this disease too, dry mouth, tooth decay, hoarseness, constipation (even tho I have Ulcerative Colitis), dry cough and fatigue.
Looking forward to meeting people who understand and cope. I think I know some of you from another forum. waving hi
Blessings,
Connie
Hi Connie, Joyce here from Polk County. I would love to be a part of this community to share with others that have sjogens. 
Hello, for several years I was told that I had MS. Until 2005, I was then told I had Sjogren’s, vasculitis, RA and was suffering from peripheral neuropathy, ataxia, depression, and fatigue to name a few. I now have crohn’s and Primary Biliary Cirrhosis of the liver. I would like to connect with others who have the same conditions associated with Sjogren’s and learn more about diet and what is helping others to cope better.
Hi im 35 i live in australia and have just been officially diagnosed with sjogrens.I have been having symptoms for about 3 years or so though. i have severe dry eyes, mouth, nasal passaged are cronically inflammed and infected, my GI tract is ulcerated, i have arthritis in my thumbs and right wrist and many pther places hurt too in a flare. the fatigue got that in buckets. Sjogrens is my first diagnosis but i have a feeling that there are more lining up to join.
I just wanted to say hi and hope i can share the journey with some people
Hi Pudmot
I also have arthritis in the thumb area. I have had joint replacement in my right thumb which will be a year ago on 11/13. It has been a long recovery but I don’t have that awful cramping in the muscle of the hand. I do get stiff in the new joint which is a ligament taken from my wrist. I also have it in the other thumb in the left hand which will require surgery in the future, not ready for it as of yet.
I have arthritis in other fingers and feel it in my knees at times. I exercise regulary which does seem to help even though painful at the start.
My eyes are severly dry–have had cauterization of the lower lid of both eyes (punctal ducts). I am seeing a specialist who deals with problems of the cornea. I am currently on a antibiotic therapy to help with the blepharitis in both eyes. Once the inflammation is down, he will preform cautheriztion of the upper lid punctal ducts. Also on Restasis, Lacrisert, eye drops, eye ointment. It is a real pain. My eyes ache, and I put up with blurriness alot of the time. Been advised to stay well hydrated at all times and I do with eight to ten glasses of water a day.
My liver functions were elevated so my doctor took my off my cholesterol meds to see the difference. Have had a liver ultrasound done and will follow with my gastro in about three weeks for more bloodwork. My primary bile duct is larger than it should be.
Constipation is another problem. I am on Amitriza and Miralax to help ease the problem.
AT times I just don’t feel like I have any control over my body and get down over it.
I hope this will be of some help knowing others are out there with chronic illness that you can communicate with. The internet can be a great thing.
Minischnauzer
hi there, i work with the careplace team. i think careplace is awesome. i hope it will really help people to share, support eachother and learn. we can all use support and understanding and it is so important for all of us who have experienced difficulties to have a safe and informative forum in which to do so. thanks for visiting - it is really rewarding for all of us to see people reaching out to eachother - it is what careplace is all about.