What do I have to look forward to in the future I have already started having the numbness in my feet and lower legs, but am still able to walk using a cane.
It’s hard to predict. The rate of decline is highly variable among individuals. Make sure you are well-nourished, but keep your weight at a minimum if possible. Your best aerobic exercise is probably swimming or perhaps a stationary bike. Avoid lifting heavy stuff, and any movements that cause impact to your frame. My wife’s aunt was diagnosed with it when she was in her early 70s. She’s 86 now, and still traveling the world!
Hi every one, I have been in chronic pain 8yrs now. I had breast cancer they performed a masectomy with reconstruction surgery. They used my back muscle and cut a nerve the pain is unbearable. My breast is encapsulated I went to a breast surgeon last month and he said to me that no body should suffer in pain and he was going to do some reasearch on the pain I have in my back. Yesterdays appointment was totaly different he said to me you want to see pain I should bring you to the V A hospital. The thing is my husband says the same thing to me all the time. I don’t get it does any one care I just want to die I hate liveing in this much pain.
Lisa
hi there, i understand what your going through.being in pain everyday , and struggeling to live the way your used to living , really takes its toll on you, physicily and mentally.it sounds like your doctor is trying to tell you that there are people out there who have it worse so you shouldnt complain, that may be true ,but not very comforting to hear.there are alot of doctors who are afraid to treat pain, because they would rather you leave there office in pain then leave there office addicted to pain meds.i did read that they are coming out with newer pain meds that cant be abused, maybe for us chronic pain sufferers, thats a good thing. then the doctors wont be so scared to help up manage our pain.try to hang in there, and stay positive.the summer months are here, usually for the most of us, these are the “good” months, with the pain being more tolerable.if your doctor wont help you even try to manage your pain, so you can live a somewhat good life, see another one, or get a referral to a pain clinic if you have to.you do have options, remember that.i hope this was somewhat helpful,good luck.
I suppose I was lucky a few years back to be referred to a pain clinic,
and that might be what some of you need to request from your doctors if
available in your area. They were wiling to prescribe the strongest
drugs available (and I tried them all) for pain. The doctors said when
you’re in real, excruciating pain, addiction is the last thing to worry
about. It was strange hearing that from doctors, as up until then my
doctors had all been more concerned with addiction than they were with
pain. All that said, however, I hate taking medication, worry about
kidney and liver problems from it, and the pills knocked me out to the
point that I was unable to stay awake during the day, so I’ve gone back
to being in pain every day of my life (taking over the counter meds)
just so I can go to work each day and make a living.
I don’t know what the answer is, I guess we each need to deal with our
pain in our own ways, but I definitely would suggest talking to your
doctors about possible pain clinics in your area. My clinic required me
to come by twice a week for physical therapy (gentle movement, ice or
heat packs, etc.) and that was $25 each time out of my pocket with my
health insurance, plus the co-pay on my meds, so I wound up spending
$200+ a month which was not easy on my pocket book.
-----Original Message-----
From: leana [mailto:chronicpain-cpt3552@lists.careplace.com]
Sent: Friday, June 01, 2007 9:49 AM
To: Peterson, Carole
Subject: Re: [chronicpain] spinal stenosis
Hi every one it’s Rya. I forgot you all don’t know the entire story I’m new to this group. Anyway, I have been going to pain management and have tried many of the pain pills out there. I am very fortunate I have a doctor who prescibes meds for the nerve damage in my back as they used that muscle to help create a breast. Unfortunatly the pain pills do make me sleep a lot but hey it’s better than suffering in pain. I didn’t realize that there are people out there like us in pain that can not get pain meds until I started reading these type of groups on the internet. I can’t believe a doctor would make a person in pain suffer. They should be shot (just kidding) The doctor that made that comment to me was a plastic surgeon. My masectomy breast is encapsulated and I need to have it taken care of. I have put it off for 2yrs now. It is so tight and hard there are times I have woke up in the middle of the night and actually got a butcher knife and thought of puncturing it to realese the pain. Honestly I am petrified to have this surgery performed even though this surgery would be nothing like the first one that has put me in chronic pain and destroyed my life. I don’t trust plastic surgeons. When I had the reconstruction done I kept telling the plastic surgeon something was wrong I felt like a twisted pretzel and the pain was unbearable, his policy was he prescibed pain pills for 1-week. I kept calling and telling them how much pain I was in and they were very cold hearted. On my follow up visits my husband and I kept telling him something was not right that the pain was unbearable he told me I needed to see a physciatrist, needless to say he never finished the procedure he kept makeing up excuses that my inplant was not in etc. My oncologis found a sureon to finish the procedure she also prescibed pain pills to me for a while then told me about this great pain specialist I shoud see. Sorry it’s so long but there’s my story. Wow I have never written it out before. Please excuse any of the mispelled words. It’s killing me just typing this I have to lay on the couch with ice and get up a few times and move around. Sorry to bore you guys but I’ll tell you what I feel good to have written that for some reason.
Take care everyone
Lisa
Hi all, my name is Dee, and I to suffer from severe chronic pain. I was in a “minor” auto accident that herniated L-5/S-1 and had 5 discectomy’s befor having those fused, then had L-4/L-5 fused, the pins cam loose had them redone, suffer from DDD and severe irritable bowel. I have been throu 11 back surgery’s, have neuorpathy in my right leg and left foot. I am now permanetly disabled after being a paramedic for 25 years, this has been since 9/2002. My family says I am addicted to pain meds, and I have been to many pain docs, but have a great one now. I am still dealing with being unable to work as I loved to work and disabilty pays very little as you may know. I also suffer from depression, my family is not supportive at all. Recently I was hospitalized for abdominal problems twice last month, the ER staff were very kind knowing I am a chronic pain patient and when I was admitted my pain doc came in to manage my pain. I am on Dilaudid 20 mg extended relieve plus oxyconce for breakthrough pain and neurontin, elavil, several smooth muscle relaxants. I am opoid tolerant so morphine does not work. While in the hospital even though my pain doc ordered IV dilaudid, the RN’s would not give it to me they would start with 5 mg oxycodone, then 20 mog oxycontin ( which I am tolerant to) and hold off giving me the iv dilaudid. By that time I was feeling withdrawal effects. They really need updating on chronic pain as much research I have done and my current pain doc states it is a disease like diabetes, heart diasease etc… I hate labels, and I am very depressed because my limitations are becoming real. I keep you all in my prayers and can relate to most as I to have multiple system disorders. Pain sucks, but being labeled I think is worse. Keep your chins up and hopefully I can help soemone at sometime, be blessd with some easing of pain dee
Liza,
I does help to share your story and get or vent what
ever it is that is bothering off your chest. I can’t believe the pain that you must be in
and the heartache of not being listened to while
hurting so badly. You surgeon reminds me of a
podiatrist that I saw. Unreal. These people should not
be allowed to practice medicine. Just know that all
doctors out there are not like them and there are good
ones. My sister had a reconstructive surgery done to
minimize her breast size and she too had issues with
her surgeon. She now can’t find a bra to fit her
properly because she is so mis-shaped. The doctor even
quoted her a price after she got preauthorization from
the insurance company and then he tried to bill her
thousands of dollars afterward. It is possible to make
mistakes but this doctor was crooked from the get go.
Hang in there and know that you are not alone. We may
have pain for different reasons but pain is pain no
matter what caused it or where it is on your body. You
hang in there and know that better days are ahead. I
am sorry that you had to have a breast removed as I
know it must be hard to deal with emotionally and
physically but you are here and together we can make
sure that tomorrow is a better day for you.
Beth
~-
-------------- all
text below this line will be cut off in your replyHi every one it’s Rya. I forgot you all don’t know
the entire story I’m new to this group. Anyway, I
have been going to pain management and have tried
many of the pain pills out there. I am very
fortunate I have a doctor who prescibes meds for the
nerve damage in my back as they used that muscle to
help create a breast. Unfortunatly the pain pills do
make me sleep a lot but hey it’s better than
suffering in pain. I didn’t realize that there are
people out there like us in pain that can not get
pain meds until I started reading these type of
groups on the internet. I can’t believe a doctor
would make a person in pain suffer. They should be
shot (just kidding) The doctor that made that
comment to me was a plastic surgeon. My masectomy
breast is encapsulated and I need to have it taken
care of. I have put it off for 2yrs now. It is so
tight and hard there are times I have woke up in the
middle of the night and actually got a butcher knife
and thought of puncturing it to reales
e the
pain. Honestly I am petrified to have this surgery
performed even though this surgery would be nothing
like the first one that has put me in chronic pain
and destroyed my life. I don’t trust plastic
surgeons. When I had the reconstruction done I kept
telling the plastic surgeon something was wrong I
felt like a twisted pretzel and the pain was
unbearable, his policy was he prescibed pain pills
for 1-week. I kept calling and telling them how much
pain I was in and they were very cold hearted. On my
follow up visits my husband and I kept telling him
something was not right that the pain was unbearable
he told me I needed to see a physciatrist, needless
to say he never finished the procedure he kept
makeing up excuses that my inplant was not in etc.
My oncologis found a sureon to finish the procedure
she also prescibed pain pills to me for a while then
told me about this great pain specialist I shoud
see. Sorry it’s so long but there’s my story. Wow
I have never written it out
before. Please excuse any of the mispelled words.
It’s killing me just typing this I have to lay on
the couch with ice and get up a few times and move
around. Sorry to bore you guys but I’ll tell you
what I feel good to have written that for some
reason.
Take care everyoneLisa
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