I am a foster parent to an almost 3 year old with BPES. We have had genetic testing, developmental testing, neurological testing, and she has had already one surgery with us to refine the springs holding her eyelids open. She is upcoming on another surgery next month, to open the eyelids at the bridge of her nose, which is very wide and thick. This is our first experience with BPES.
What are some of the personality characteristics in this type of child? Are there any developmental dissabilities that others have found in their children?
She was awfully upset after her surgery last year. She had 2 prior surgeries before going into care. The surgeon says she cannot rub her eyes after this next surgery. Does anyone have suggestions regarding this. Both eyes will be done.
Thanks for your help.