Surgery yes or no


#1

my grandson was told he had this there is no one in our families with this problem is that possable they want to put slings in but he is only 8 months and i would like to know if there are other options


#2

Hi Tina,
My daughter Liliana, age 4, has bleph and had her first surgery for ptosis this past summer. The slings have worked well and made a big difference in her head posture. We were lucky enough to be able to wait a few years before she had to have surgery but it’s of course never an easy decision - even when you know it’s necessary. The only other option tossed around the years before her surgery was patching to try to make her eye muscles stronger. The doctors never had us do this because her ptosis (drooping eyelids) was severe enough that it would not have made enough of a difference. We are happy to have had the surgery done for Liliana as she doesn’t have to tilt her head back to see and she sees better just by opening her eyes wider by using her eyebrows. The first 24 hours after surgery were a bit rough for Liliana, but they say a lot of that is from the anesthetics, but after that things healed quickly and it was a smooth recovery. I’m not sure where you are located but we live in Tucson, AZ and have worked with a fabulous team of pediatric surgeons and opthamologists. If nothing else, get a second, third, fourth opinion in order to reaffirm that doctors agree that it’s of enough impact that surgery would be beneficial. We ALWAYS got second opinions from diagnosis, to glass RX, to surgery and it made us feel much better. I hope some of this info has helped an puts your mind at ease. Please let me know if you have any other questions. God Bless!
-Suzy > To: susannahquiroz@hotmail.com> From: blepharophimosis-cpt7109@lists.careplace.com> Subject: [blepharophimosis] surgery yes or no> Date: Thu, 13 Dec 2007 14:26:43 -0500> >


#3

Dear Tina,

My children’s father, one of my son’s and my grandaughter all have bleph.
Each case is different and your grandson’s parents hopefully will check with
at least a couple of doctors to see what the consensus of opinion is. My
son was operated on soon after he turned 4, and my grandaughter is about to
be operated on in Feb. just before her 5th birthday, but both my son and my
grandaughter had enough lift that their vision was not critically
obstructed. Had it been, they would have been operated on much earlier.
I agree with Suzy - get some good opinions from several respected
doctors. We are in Seattle if that helps

All the best,

Lexi

On Dec 13, 2007 11:26 AM, tina windham <
blepharophimosis-cpt7109@lists.careplace.com> wrote:


#4

Hi Tina, My daughter Ruthie has Bleph and is also the
first in our family to have it. She is 4 years old now
but had the sling surgery done at 8 months old. We
thought she could see fine before the surgery but it
was incredible how she looked at everything after the
surgery. It was like she was seeing everything for the
first time. She was really out of it the first 24
hours after the surgery but by the next day was right
back to her wonderful self. If you have any questions
dont hesitate to ask. Jill Ricard
— tina windham
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my grandson was told he had this there is no one in
our families with this problem is that possable they
want to put slings in but he is only 8 months and i
would like to know if there are other options

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