I spoke to my doctor about the excessive sweating I am having with Dercums. He said the medication is called Robinul. When winter started my symptoms litterally cooled off so in the spring I am going to start that. I live in Michigan so at least I get a break for awhile. I still have a break out now and again but not 20 times a day. So there you all go good luck, hugs to everyone! Linda
Thanks Linda I will ask my doctor for Robinul. You are so nice to share your info!! It was so embarrasing to sweat when I had to give lectures when I was still working.
Since the cold weather arrived, I am freezing most of the day but have very intense hot flashes and sweating. I wake up soaked from head to toe most nights and have to dry my hair and change and sleep on the couch! I am wearing my washing machine out with sheets!
Judy
I have had the same night sweats off and on for years. I had a hysterectomy at age 40…everything out…it seems like it must be related to hormones?? I took hormones for years but quit about 5 years ago when the decided they increased the risk of breast cancer. It is ridiculous…water running out of my head my pillow soaked…it wakes me up. The additional problem of soaking sweat when I get nervous…is so embarassing! I think part of it was from the pain of trying to walk. I use a scooter now and it makes some activities almost fun again. I never got an answer or any help for this problem but heat regulation is off in DD. If you feel my skin it feels cooler than everyone’s but I am sweating away. It is like my body thinks it needs to cool me down?? I’m sorry that you have this problem. People don’t mean to be thoughtless but they say “You’re sweating” like I didn’t know! I carry washclothes in my purse and a personal fan.