I do thank everyone who took the time to reply to my first confusing post. And although I am thankful for the suggestions I am dissapointed in the numerous emails that suggested I find a group of people who have my specific condition. I’m sure they were not ment to make me feel un-welcome and were only looking out for my best interest but still, it didnt feel very good. I was going to make this post under my initial thread but thought maybe it was important enough to deserved its very own.
When we feel the need to reach out for support for our pain its a pretty sure bet were all experiencing a fair amount of similar circumatances. Sure pain can effect so many different parts of the body and involve many different conditions, but it still may hurt just the same. I dont care if you have a wort on the bottom of your foot that chroniaclly hurts. If it keeps you from living the life you want, you belong in a place with people who can understand that feeling. Not nessesarily with peole who understand what lead up to getting the wort.
I’m not saying people with my condition dont understand what I’m going through at all. Infact most everyone with IC has experienced some amount of pain. But if there are people who can count the days they felt pain free in the past year on one hand than I probably have more in common with them.
alot of IC sufferes dont know what its like to be a slave to a little pill with an orange warning label, and maybe not everyone here takes pain meds, but I’m betting more CPers here have at the very least experienced PM than I’ve found with IC.
As I said in the beggining I’m sure no one ment to make me feel un welcome and were just trying to help. But there is a huge lack of understanding in the world about CP already and why we sometimes need the medications and care we do.
The way I see it we all need to stick together no matter what our condition. There is no need for anyone to feel alone or isolated in this world. Which is just what CP has done to every single one of us at some time.
If we dont show eachother understanding and open arms why should we expect anyone around us to understand.
If youve gotten to this part of my thoughts, thank you for listening. It just bugged the heck out of me to get more posts suggesting I go elsewhere than welcoming a fellow Chronic Pain Sufferer. You never know who your all but turning away, I may have something to say which could make a difference in your day.
Thank you Mrs. Barb for making me feel welcome and accepted. You must be one of the angels in disguise.