UPDATE on Confused Again!

Achalasia
#1

Hi everyone, Well, I had those weird pains in my upper abs that would radiate through my chest, ribs, jaw, and back. Had x-ray and HIDA scan for gallbladder and everything came back normal. I have been trying Acupuncture also.

I went and seen another GI specialist who actually sounded like he knew what I was talking about!! He said I have Mild Vigorous Achalasia, and that Doctors are now starting to NOT recommend the Myotomy from the start. He would recommend the pneumatic dilation before the myotomy (at least in my case). I said that the last specialist I seen 5 years ago, said that the myotomy was the permanent fix, but from the support group I have heard of many having multiple myotomys. He said 5 years ago that is what they thought but are now learning it is not always the best way to treat A.

I am still having this burning and stabbing pain in stomach that radiates everywhere so they have now put me on Prilosec 20mg in morning and pepcid 20mg at night to see if the pain returns. (seems like I am always an experiment with everyone) One doctor even said “Sometimes people just have unexplained pain” This is not a pain that I am able to function with and feel like I am going to go crazy when I have it. No one has offered any pain meds due to the fact they do not know what is going on.

If any part of this story rings a bell, and you happen to think you have the answer, I am all ears!!

Thanks for your help
Sandy

#2

@slm041302

I have had the same pain for years. I believe it is WIND (GAS) Gulp very
cold milk and it will go away.

#3

Sandy - have you read the infamous Pepto-Deb NCCP post from the Yahoo site? I’m hard pressed to think that you’re having anything other than spasms. MOST of us have them and they can be debilitating. I went to several GI’s who did nothing but prescribe acid blockers for me until finally 7 years after being diagnosed with A, I finally got the spasm diagnosis.

There are many tricks and ideas on how to best deal with them. I HIGHLY recommend? you check out the NCCP post on the Yahoo site. It is so detailed and so well written I printed off several copies and gave them to my regular GI the last time I went to see him.

If you don’t find yourself thinking ‘yes, this is EXACTLY what I have been going through’ when you read it, THEN go back to a GI.

Where do you live, are you seeing a GI who actually has some experience with A? Going to the right doctor can make an enormous difference.

#4

Can you post the thread here? Can no longer log on to yahoo.