This information came in the e-mail from our VCFS support group leader. VCFS is a 22q syndrome oftentimes associated with DiGeorge. Some see it as the same syndrome and/or 22q11.2 Deletion Syndrome. This webcast is being presented by Donna Landsman who has written a book for educational interventions. It’s a great book. Anyway, here’s the info:
Educational Interventions for Students with Velo Cardio Facial Syndrome
(22q11 deletion syndrome)
Learn about this important new genetic deletion syndrome!
Click here to jump directly to registration
What is Velo Cardio Facial Syndrome?
Velo Cardio Facial Syndrome (22q11 deletion syndrome) is second only to DownÃ‚Â¹s Syndrome as the most common genetic deletion syndrome. It affects more children (1 in 2,000) than Fragile X, Muscular Dystrophy, Cystic Fibrosis, or Hemophilia. It is estimated that 130,000 individuals have this syndrome in the United States. A child is born with VCFS every three hours. Yet, a great many affected individuals are not readily diagnosed. School personnel are unfamiliar with VCFS and are not trained to work with students who have the syndrome. This webcast is intended for teachers, speech and language therapists, administrators, early childhood educators, OT/PT therapists, parents and anyone else working with special needs students.
Greater than 90% of individuals with VCFS need specialized educational programming. They struggle with cognition, speech and language, fine/gross motor issues and mental health issues. Many will go on to need tailored support as they transition into adulthood. Early intervention and specialized programs can help VCFS individuals lead happier and more productive lives.
Log into http://www.usatoday.com/news/health/2007-06-06-vcfs_n.htm to read a recent article
on the syndrome.
Learn how you can make a difference!
Presenter: Donna Cutler-Landsman
See website at http://www.Cutler-Landsman.com.
Author of new book: Educating Children with Velo Cardio Facial Syndrome available from http://www.PluralPublishing.com .
Ms.Cutler-Landsman is an educator with 30+ years of experience who has spoken internationally on the topic of VCFS and education. She is a past president of the Velo Cardio Facial Educational Foundation and currently is co-regional director for the United States and Canada. She also has a 23 year-old child with the syndrome.
Live web casting is available for this event.
What is a webcast?
Webcasting is a fully integrated web based system that captures and records audio, video and data, such as PowerPoint slides, in one streamed live media presentation. Attendees can view the broadcast from home, school, in an auditorium or anywhere that has computer access. Attendees will have the opportunity to ask questions, make comments and otherwise participate in the broadcast. To view an example of a webcast, log into http://www.uwex.edu/ics/webcast/index.html.VC
All webcasts will broadcast at 3:00 p.m. USA Central Time. Archived tapes will also be available if the live event cannot be attended.
November 13, 2007
Overview of Velo Cardio Facial Syndrome
December 11, 2007
Birth to Age 8 --Early Issues and Interventions
January 8, 2008
Ages 9-14–Upper Elementary/Middle School
February 12, 2008
Age 15+ High School/Transition to Adulthood
To participate, you will need the following:
An Internet connection (56k modem or faster)
Speakers or a headset for your computer
Windows Media Player version 9 or newer. If you do not have Windows Media Player, you can download it from the Microsoft web site at: http://www.microsoft.com/windows/windowsmedia/mp10/
Go to the URL included with the registration confirmation on the day of the event to view the
webcast. It is also recommended that you visit this link in advance to test the compatibility of your browser and connection.
The cost of the broadcast is per computer, per location. Therefore, more than one staff member
can participate for just one registration cost. Personnel from districts that purchase the live broadcast will also be able to view the archived tape of the broadcast free of charge for a period of several weeks.
Districts who cannot attend the live broadcast are invited to purchase archived tapes of any of the four broadcasts to view at an alternate time or date.
A discount is available when all four broadcasts are purchased as one package.
Learn about this newly recognized syndrome.
Be in a position to make a difference.
Register now for these important webcasts!
To register log into the following link: