Hi everyone,
My name is Alida and I’m a clinical research coordinator at a hospital that is currently runing a genetic study to determine what gene(s) might be responsible for causing Wegener’s.
What we ask of our participants (who must reside in continental North America, at present) is to complete and send in a consent form and a questionnaire, then have a blood sample drawn and sent to us at the hospital. If you live outside of Canada, we can send you a blood kit that includes the 4 vials we’d need, as well as the FedEx documents and shipping materials, and the customs documents needed to ship biological specimens across the border.
If you’re interested in participating, please contact me only by email at: . We need approximately 500 affected participants, and are only teetering at about half that amount right now.
Many thanks for reading this, too. I know WG is an incredibly elusive disease, and quite terrible in how it manifests itself. Together, we can work together towards better diagnosing this disease, and better treatments for it as well.
Good health to you,
Alida