I am a SURVIVOR of Central Pontine Myelinolysis, an acquired toxic demyelination disorder said to be a neuromuscular disease of the central nervous system. This disease came to the forefront in 1959 and has continuously been very quietly withheld from the publc world wide. Recently I’ve founded the “CPM Awareness Foundation.” Along with my own chronic issues, I have found my best therapy in doing my best assisting other CPM victims or their families as most CPM victims that live or in need of help in many areas. Now as a CPM survivor, layman advocate and founder I’ve been involved in many scenerios bringing “CPM Awareness” to many Government Institutes along with many influential organizations.
It is stated in all imformation that there is no cure currently available which tends to be both true and false. Central Pontine Mylinolysis is what is called an Iatrogenic disease meaning it is acquired by, “Error of Treatment.”
How did you get this disease? What are it’s symptoms for you?