What have you found to be the best treatments for Agenesis Of Corpus Callosum? Please share your treatment experiences with the community.
ACC is such a highly variable condition that there is no one standard treatment. If a child is diagnosed early, then an EI (Early Intervention) evaluation is recommended, with follow up based on the results if warranted. It’s also a good idea to schedule a visit to an ophthalmologist, as eye problems are common. Otherwise, treatment is by responding to symptoms or effects as they present themselves.
For many of us, this diagnosis is found early in our children's lives because the abnormality shows on the ultra sound and can be confirmed once our babies are born. The advantage is that this allows us to begin early intervention services right away. Therapy intervention includes occupational therapy, speech therapy, physical therapy, water play, applied behavioral analysis, sensory therapy, music therapy, horse therapy and so on.
Early on, we can also run the gaumlet of visiting all the doctors from eye, to ear, to genetic and so on. In many cases ACC is simply a mid-line birth defect, but there may be other midline birth defects. Our son had huge adnoids and tonsils that had to be removed. Some kids have issues with thier legs and so. Even with early intervention though, there can still be some stuff that doesn't materialize until later. Our son began showing signs of hyperactivity around 4 years old, but was a fairly content baby and not overly active as a toddler.
Besides early intervention, medicine can really help in some cases. It can improve the quality of life for some who can't focus, sleep, have stable moods or of course for those who have seizures.
We have found schedules and normalcy in the home helps our child as well.