What do the small painful nodules mean?

Dercum's Disease
#1

Hi everyone, I’ve just noticed some very small nodules that hurt like the devil in my ankles and up my legs, has anyone noticed the same thing and what does it mean as far as progression.

They are on my collar bone, rib cage, and many other places but noticeable mostly in my ankles…and do we all suffer from “long bone” pain? Pain in the long bones of the leg? Man oh Man it aches so much.

Thanks all,

Bev

#2

Hi Bev…My legs have hurt since I was a child. My Mom used to have me rub them with a glass milk bottle. They used to call this “growing pains”. I have DD everywhere. The ones down my calves in back are very painful. Also, the ones around my ankle bone are always very tender. The ones along my sciatic nerves are awful and the ones that encircle the tops of my legs where they meet the body are very tender…I can hardly stand to touch them. I probably have a couple hundred in my legs. I’m so sorry that you have this. It is like a toothache in my legs. Hugs, Grandma Sylvia

#3

Hi Bev,
I have little ones all over. They are my new ones as far as I can tell. I have ones the size of small beads all over the place.

#4

Same here, Sylvia and Bev. I have those small nodules all over me and my legs have always hurt.

Hugs,

Pamela

#5

I have the small ones too, some feel like little beads. I always think they are babies. Some never leave mommas side and some show up far from big ones.

I have one on the inside of my right knee and to be so teeny it sure packs a whollop of pain. One day it hurt when I was at the grocery and I felt like I was holding onto the cart to keep from falling. It felt like a thick needle peircing my leg about 3 inches deep behind my kneecap. (Bad Baby!)