i want to know where and how i can get tested as well as what i need to do to lessen the odor. I am also a hopeless romantic and would love to know if any of you have normal relationships/marriages as i’ve always wanted to get married and have a family. One more thing, hope am not being too inquisitive- how did you find out u had tmau? How do you deal when people are mean and insensitive? i just learnt i might have it so right now i really don’t know how to deal on my own so am always upset and crying- at work in the toilet, in the car, and i cry a lot in bed at night caz am alone. When am around pple, sometimes i forget am different and i laugh a little.
Welcome aboard. First to answer your questions.
Currently, I going through my doctor at kaiser, I have been reporting
this issue for over 8 years and gotton no help… I did have a appt
today and took my research. The docotr order me a urine, liver,
kindney,ect test. She want to see the results and then she will order
the test for TMAU. I’m releaved that someone did something.
I used to cry all the time. I even went into depression about 2 years.
I felt like I died inside. When people made fun of me and call me
names it hurts like hell, still do but not as much as it did before. I
reallize that I human and I didn’t do anything wrong. For the most
part I ask myself. If this was someone else, how would you treat them.
Sadly to say I probaly would ack as other… So I try to learn from
what I going through and not judge a book by it’s cover.
My issue did not show up until after I was married. I had been married
5 years before we started a family and bam, that when it appeared.
Around the time I should have love being pregant, I had a odor that I
couldn’t get rid of. First, I thought it was the horomones but after I
had my second son and it was still there, I begin to loose hope. I’ve
always been a spiritual person and this test me to the limit. Many
time I said to God I quite, I even prayed for death, he said request
denied… So, I still alive and thankful dispite it all. It take true
courage to handle this…
I saw a special on inside edition about a year ago, saw the same
special 3 week ago, did alot of research. I saw that people telling
thier stories on Oprah, Tyra Banks, ect. I you look under these
stories it will give the testing place, I just need my condition
documented for disability…I may have to give up working in the work
place due to the cruelity of people…at this point I’m tired…
The best thing at this point that you can do is to be tested and have
it documented with your company (educate them). No company wants a law
suit…Try to go through your insurance, if not type in TMAU in
google and it will bring up symptoms, testing, ect and follow link. it
will give you the name of center that do testing…
I hope this has help you and in all honesty you learn to deal because
you have no choice. Hang in there…keep smiling…
Penelope
On 6/20/07, ardenlover Trimethylaminuria-cpt4589@lists.careplace.com wrote:
Welcome aboard. First to answer your questions.
Currently, I going through my doctor at kaiser, I have been reporting
this issue for over 8 years and gotton no help… I did have a appt today
and took my research. The doctor order me a urine, liver, kindney,ect
test. She want to see the results and then she will order the test for
TMAU. I’m releaved that someone did something.
I used to cry all the time. I even went into depression about 2 years.
I felt like I died inside. When people made fun of me and call me names
it hurts like hell, still do but not as much as it did before. I
reallize that I human and I didn’t do anything wrong. For the most part
I ask myself. If this was someone else, how would you treat them.
Sadly to say I probaly would ack as other… So I try to learn from what
I going through and not judge a book by it’s cover.
My issue did not show up until after I was married. I had been married
5 years before we started a family and bam, that when it appeared.
Around the time I should have love being pregant, I had a odor that I
couldn’t get rid of. First, I thought it was the horomones but after I
had my second son and it was still there, I begin to loose hope. I’ve
always been a spiritual person and this test me to the limit. Many time
I said to God I quite, I even prayed for death, he said request denied…
So, I still alive and thankful dispite it all. It take true courage to
handle this…
I saw a special on inside edition about a year ago, saw the same special
3 week ago, did alot of research. I saw that people telling thier
stories on Oprah, Tyra Banks, ect. I you look under these stories it
will give the testing place, I just need my condition documented for
disability…I may have to give up working in the work place due to the
cruelity of people…at this point I’m tired…
The best thing at this point that you can do is to be tested and have it
documented with your company (educate them). No company wants a law
suit…Try to go through your insurance, if not type in TMAU in google
and it will bring up symptoms, testing, ect and follow link. it will
give you the name of center that do testing…
I hope this has help you and in all honesty you learn to deal because
you have no choice. Hang in there…keep smiling…
Penelope
i want to know where and how i can get tested as well as what i need to
do to lessen the odor. I am also a hopeless romantic and would love to
know if any of you have normal relationships/marriages as i’ve always
wanted to get married and have a family. One more thing, hope am not
being too inquisitive- how did you find out u had tmau? How do you deal
when people are mean and insensitive? i just learnt i might have it so
right now i really don’t know how to deal on my own so am always upset
and crying- at work in the toilet, in the car, and i cry a lot in bed at
night caz am alone. When am around pple, sometimes i forget am different
and i laugh a little.
__
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http://www.careplace.com/account-notifications
Welcome aboard. First to answer your questions.
Currently, I going through my doctor at kaiser, I have been reporting
this issue for over 8 years and gotton no help… I did have a appt today
and took my research. The docotr order me a urine, liver, kindney,ect
test. She want to see the results and then she will order the test for
TMAU. I’m releaved that someone did something.
I used to cry all the time. I even went into depression about 2 years.
I felt like I died inside. When people made fun of me and call me names
it hurts like hell, still do but not as much as it did before. I
reallize that I human and I didn’t do anything wrong. For the most part
I ask myself. If this was someone else, how would you treat them.
Sadly to say I probaly would ack as other… So I try to learn from what
I going through and not judge a book by it’s cover.
My issue did not show up until after I was married. I had been married
5 years before we started a family and bam, that when it appeared.
Around the time I should have love being pregant, I had a odor that I
couldn’t get rid of. First, I thought it was the horomones but after I
had my second son and it was still there, I begin to loose hope. I’ve
always been a spiritual person and this test me to the limit. Many time
I said to God I quite, I even prayed for death, he said request denied…
So, I still alive and thankful dispite it all. It take true courage to
handle this…
I saw a special on inside edition about a year ago, saw the same special
3 week ago, did alot of research. I saw that people telling thier
stories on Oprah, Tyra Banks, ect. I you look under these stories it
will give the testing place, I just need my condition documented for
disability…I may have to give up working in the work place due to the
cruelity of people…at this point I’m tired…
The best thing at this point that you can do is to be tested and have it
documented with your company (educate them). No company wants a law
suit…Try to go through your insurance, if not type in TMAU in google
and it will bring up symptoms, testing, ect and follow link. it will
give you the name of center that do testing…
I hope this has help you and in all honesty you learn to deal because
you have no choice. Hang in there…keep smiling…
Penelope
-----Original Message-----
From: ardenlover [mailto:Trimethylaminuria-cpt4589@lists.careplace.com]
Sent: Wednesday, June 20, 2007 2:06 PM
To: Rebecca Woods
Subject: [trimethylaminuria] hey am new
How to get tested.
monell.org
Monell chemical senses center
3500 market st. Philidelphia, PA 19104
Try this web site. It has information on testing for fish odor syndrome.
Try changing your diet. See if avoiding red meat helps. The other thing is to drink a small glass of tomato juice each day. Just like it kills the skunk smell off of a dog it will lessen the smell and is good for the human body.
Hope is necessary to arise each day.