Wife with HD since chilhood

My wife was diagnosed with HD over 35years ago despite experiencing stomach problems as a child. My wife has had nearly all of her bowel removed having suffered from blocked intestine, twisted intestine and gangrene of the intestine. She is on Fentanyl patches 37mg, methadone, morphine and a number of other drugs to try and help with the pain but I still watch her suffer ever day of the year. She has had approximately 15 operations since she was in her 30s she is now 62 but still suffering. I know it’s hard for her, she is a brilliant wife, mother and grandmother, I just which there was someone else in the same position who she could talk to other than the doctors, pain clinics and myself. So if anyone out there wants to chat please contact.