Please take a moment to introduce yourself to the community. Everyone here has something to share about Lymphocytic Leukemia, Acute. For the discussion boards, we ask that you keep your full name and location private.
I’m living with Acute Mylod Leukemia, and am looking to find people to talk with about treatment, and living with the side effects… such as fatigue, and joint pain.
My husband and I will be moving the end of this summer to take care of my brother,who has this condition. I don’t know what all to expect but what ever comes we will deal with it. Anyone that would like to talk?
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Hi, I got diagnosed with ALL w/ Philadelphia Chromosome in September 2005. In November 2005 I was told I was in remission. On December 23, 2005 I had a successfull Bone Marrow Transplant. All of my medical procedures and tests have been done here in Cleveland Ohio at the Cleveland Clinic. I have very good Doctors and Nurses. I am currently having problems getting blood-I get bad reactions and I have the blood banks looking into it along with a team of Doctors. This week I have low hemoglobin counts and I’m already getting the Aranesp shot. So they think it’s my kidneys so today I went for more blood and also an ultrasound of my kidneys and bladder. I have a 1 PM appointment with a specialist tomorrow.
I like connecting with others to learn more about you and to support you in any way I can.
Would love to learn more about ALL.
Hello i am a mother that has a child that has had a.l.l 3 times now. he is currently in the hospital after getting a stem cell transplant almost a month ago. He seems to be doing well but we are still waiting around to see what happens. I would love to talk to anyone that has had to have a stem cell transplant so i can find out what you had to go through and how things are going with you right now. All the info you can give me i would love to hear from you.
thank you.
I have a 10 yo daughter who was diagnosed with ALL before her 3rd birthday. She successfully beat her illness and has been off treatment for 5-1/2 years. I like to keep up with new developments in the Leukemia field and also like to help others who are currently dealing with this disease.
My husband has just been diagnosed
I’m intrested in this condition because my mom was Diagnosed with it last year. We were told it is dormate and may stay that way forever or may come out and if it did there is nothing they could do for her. I would like the chance to talk to any one that can offer a little insight to this disease and or thoughts and insperational stories.
I am a single caregiver for my now 4 year old son…dx July 22nd 2004 with “High Risk ALL”…
My eldest daughter Caitlin have been fighting with this condition for 9 years now.She is now in complete remission after relapsing 3 years ago and she’s doing well now.I am now working away from home and in constant monitoring of her and I want to be updated on the latest treatment protocols and all updates for this condition. I also want to share our experiences and exchange thoughts with parents experiencing the same.
Hi. I am a mom of a child with ALL and I am just at wits end some days. Especially now. i am so tired and I am finding it hard to keep positive for her.
My son was just diagnosed with ALL. My head is still spinning with all the information … I’m glad to have found a support place. I’m hoping to connect with other parents to share expirences and tips.
Hi, my name is Heather and my Mother-In-Law has just recently been diagnosed with A.L.L. and started chemo. She is in her early 60s and in fairly good shape which is promising. She is a new grandmother to our 1 year old daughter and my 1 year old nephew, and we are all praying that she has more time to watch them grow up with us. I would love to connect with anyone in the cancer community, patients, survivors, family members/loved ones of cancer patients etc. I am interested in the chemo process and what to expect, how to be supportive and understanding to our beloved Mother as she undergoes this process.
I am 28 and have this condition that i hate, noone seems to be close to my age with same thing. Would like to meet new friends around my age who have it or have had it etc.
Other people who have children with A.L.L.
Hi,
My 5 year old nephew was diagnosed with ALL with Philiadelphia + Chromosone at Christmas and would like to get a bit more knowledge on everything in general.
I am interested in information on newest drugs and trials for adult ALL recurrance.
In December 2006, I came back from Hawaii with many mosquito bites. Since, I’m a Type II Diabetic; I thought that it was related. Both of my legs were badly swollen and discolored. I went to the ER and blood was drawn because I appeared anemic. Needless to say, I was admitted into the hospital on Christmas Day 2006.
The next day, a bone marrow biopsy was done and I was told that I had Leukemia ALL the following day.
Since then, I’ve handled all of my treatments really well. I’ve been in remission since March 7th, 2007 and I’ll be going back to work in July 2007.
I believe that staying positive and keeping my spirits ups has done me a lot of good. Prayers from friends, families, and from myself has helped tremendously. Give it over to GOD and let Him work his Love and He Will Heal You or Your Loved Ones. Keep the Faith.
Aloha,
Kimokawika