I feel like I have lost control of my life.
I am 22yrs old. I have a new baby and a wonderful sweet husband.
For some reason I always feel sick. There are very VERY few days that I feel healthy. My symptoms are usually one or all of the following:
Nausea
Headaches
Dizziness
Pain
Fatigue
I get so upset when I feel this way. I just feel like crying. All I want is for my husband to lay or sit with me and hold me to make me feel better. I have SOOOO many medications I take for these symptoms but no doctor can figure out if there is anything physical causing them. When I feel that way I get and act very nervous and scared because to me being sick is the WORST thing in the world and the most horrifying.
Okay well most of you must be thinking, okay honey its definatly just anxiety. But here’s the thing. I actually have a number of disorders. Health issues that have ruled my life since I was born. I have a very rare genetic disease called Gauchers Disease. Currently I recieve the most expensive medication world wide every week…forever.
Also my blood sugar is outa whack, I have osteopenia ( a result of Gauchers) and I have horrendous dysmenorrhea ( had it ever since my period started when I was 13), and I have kidney stones. Now I can add migraines to the list. I’ve been in and out of hospitals my whole life. I’ve been in and out of school I’ve had no friends because of all the trouble.
I’ve just basically had to base my entire life around how I’m gonna feel. I haven’t been able to have a real job ever because I will get fired from having to take time off for illnesses. I don’t feel like a good wife or mother because I need so much help.
I cry so often because I know that anxiety is causing a lot of my problems that aren’t caused by the actual proven disorders I have. Its not just anxiety its Fear. I become a little crying child when I get upset and worried about being sick. Its just funny how whenever I feel bad I usually feel soooo much better when I’m alone in my bedroom with all my pillows and watching my favorite movies.
I’m afraid to take medication due to the side effects that could make me sick (which is the last thing I want) or to become numb and unable to give my husband abd child the affection I always do.
Please Help