I was first diagnosed with IC in the 90’s. I went through all of the treatments available at that time and then opted for a surgery that put me in remission for about 4 years. IC has not hit me again full force…I am in constant pain and am trying different treatment options again. I have an appt with a Urologist Specialist tomorrow to discuss the possibility of an interstim for pain management. Does anyone have an interstim? Can anyone share with me what they use for pain management, etc.? Thanks.
I am almost 5 years NED (July 1, 2002-present) I was dxed on Oct 22, 2001 and had the surgery on Jan 30, 2002.
I have been diagnosed as clinically depressed, and sometimes have feelings of suicide.
I have Epidermal Nevus. I want to learn more about emerging reseaech on the disorder.
I just had my second rotator cuff surgery on 6/06/2007. first one in 2001 worked great until adhesive archnoiditus in lower spine caused right leg to go out fell down 3/4 of a circular stair case. A the 3 concussions, and all other ankle 3rd degree sprain. I finally felt up to the surgery. They also had to repair the bicept tendon. The post surgery exercises are killing me right now but I know it will be worth. Everyone wish me and say a small prayer for me. thanks
My spouse (26) has metastatic Ewing Sarcoma, diagnosed May 2006.
I was a relief worker at 9/ll in NYC and have asthma and reactive airway disease, RADS, etc. I want to know if there is anyone out there having problems from chemical exposure and what chemicals. Thanks for keeping in touch with me it is a great support.
my husband has encephalopathy condition after the ventalater was taken out.He went out oxegen and he is ill.
I was diagnosed with Lupus many years ago, and because of it, my health had been continuing to decline. I’ve had cancer twice, numerous surgeries and infections–in and out of the hospital constantly. A friend of mine encouraged me to try an organic powder he and his wife took that helped them. I have been using these Reliv products for about 4 months now, and have to say they really have made a big difference in my health. After the first week, I noticed my sinus infections had completely cleared up. That is something I had dealt with all my life and just expected to live with. I was allergic to everything before, it seemed. Then after about 1 1/2 months, I noticed I could get out of my car and the chair without the usual struggles because of stiffness from arthritis in my legs. Something I’ve also dealt with for some years. All my shooting pain is also gone from my joints, including hands. Most recently I’ve noticed my chronic bronchitis I’ve had for the past 3 years has been clearing up and the urinary tract infections. I had previously been going to the doctor at one point about every other week. I am continuing to take the Reliv products and hoping for continued improvement in my chronic bronchitis and urinary tract infections, which I’m told will come. On a side note benefit I never expected–I noticed too now that the cellulite in my legs I’ve had forever has been disappearing. That is an extra benefit I hadn’t even hoped for as I’d heard nothing really ever works except expensive massage machines and creams which doctors laugh at anyway. I also recently started trying another one of their Reliv products called, ReversAge, which I’ve noticed like some have told me that their hair started coming in it’s natural color again instead of gray. I’m told it has many other benefits. I wasn’t looking for younger hair, but am looking forward to some of the other stated benefits of memory improvement, reverse of damaged cells, and improved brain function. My father has a rare brain disease, so my brother and I started him on the Reliv products, and we’ve been told by doctors that they have been noticing an improvement already in his brain function. We feel he is near the end of this disease, so this was great news for us, even if it is just to give dad a little better quality of life at this point. Since then, I’ve been hearing of others who have had Parkinson’s, Alzheimer’s, and MS that these products have greatly helped.
If anyone has further suggestions for urinary tract infections and chronic bronchitis, I am always open to more information.
Hello, I am proud parent of one wonderful girl who is nine years old, She has been diagnosed with Alcohol Exposed along with other disabilities /medical condition From Un known causes.
I have been diagnosed with POS since 2004.
Hi. My name is Alex [alias Gypsy].
Recently my grandson Blake was diagnosed with Aarskog Syndrome. Blake is 10. Such a relief to finally have a diagnosis as for years my daughter Sam and myself have battled with all kinds of senarios in regards to Blakes learning and development.
We are now very lost!
As Blakes grandma I am his main carer and also home schooling teacher.
To date we have received information on what the symptoms of this syndrome are yet nothing on the effects of this syndrome.
Hence we are seeking as much knowledge as possible and would love to connect with other mums, dad,s, grandparents, siblings and anyone else that may be able to shed some light.
Hello, my name is Eleanor and I am 44 years old. On August 5th, 2007 it will be 4 years that I have had RSD.
I use to work as a chiropractic asst. and loved my job. I enjoyed working with people and helping them feel better. January of 2006 I lost my job due to my disability. I have four children. Their names are Rudy 28, Monique 26, Alyssa 14 and Alexandra 13 and my husband Jaime. I also have four grandchildren that belong to my daughter Monique and Nathan her husband,their names are Joseph 8 ,Nathan 6, Ariana 5 and Natalie the baby of the bunch who is 3. I use to love to shop and walk and go places and have fun. I nolonger am able to do any of it do to this pain that is hell. I am always at home I can not drive or walk,or do too much of anything. I have a wonderful family that is very understanding and keep me going. I want to tell you about my youngest daughter Alex, she is an angel she is my right arm or my left hip. She does everything for me. she makes me happy when I am sad, she rubs my back, neck, and FEET, she makes my worse day better, and my better day happy. On a scale from 1-10 my good days are 9, my bad days are a 20+ I take strong medication every day. I wish to GOD I was normal again!
MY NAME IS PUFF AND INTERESTED IN ASTHMA AND PTSD
im a gulf war vet. i was a POW in 91. i get my flash backs
I’M A DISABLED MOTHER OF ONE SON I’M A SURVIVER OF RSDS FOR ALMOST 9YR.'S AND LET’S GE REAL FOR ONE MINUTE,IF THEY CARED THEN, THERE WOULDN’T BE THIS MANY WEB-SITE’S NOW WOULDTHEE
my mother has cholangiocarcinoma how many years dose she has left.please answer me.l have cancer to l am her daughter.
My name is Denita, I am 42 yrs old and I was diagnosed with Ataxia in 1994. I am still intimated by it and have yet to come to terms with my condition. I guess that’s mainly because I still don’t understand it and I would like to. Please give me some information. It would be much appreciated.
Thank you
Denita.
Ive been severly depressed since i was 11.That was when i was raped for the first time.It has led to me attempting suicide n now im cutting uncontrolably.My mother abuses me mentally n physicly.I just need help.