Celiac Disease Member Introductions


#68

I was diagnosed in the fall of 2004 and mostly do Ok with the diet but still find it difficult at times. I am looking for a little suport and advice.


#69

I think our son-in-law has a very serious case of celiac disease and will postpone the tests. For my daughter and I , this is a little frightening. A specialist in Troy ,Michigan
wants to put him back on a diet with gluten so that he may possibly reach a result consistent with Celiac Disease. His mother and aunt have milder forms but his grandmother died of pernicious anemia. I was a caregiver to her and her family as my graduate degree from the University of Michigan is in geriatrics. Our son-in-law is basically drinking Gatorade and feels he can move to North Carolina without what appears to be necessary plan of attack for good health returning. I have not and will not interfere with plans.However, I did note that his grandmother might have had this disease when she developed pernicious anemia.
If they move to North Carolina area of Raleigh, is there a support group nearby? But first, is there a support group here in SE Michigan in the area of Plymouth or Canton, MI?
Many thanks,
Jane S Brown


#70

hi, i have a brother who was dx with celiac disease avbout 2 years ago, very advanced. can anyone on this site tell me about advanced psychiatric symptoms?? anyone out there familiar with anyone who has had this disease and and give me any information about depression, emotions affiliated with the disease. he also has neuropathy, optic neuritis, dizziness, white placques on brain, headaches. please respond. thx, sandy


#71

My name is Steve, I am moving to Raleigh area soon to attend NC State. I am a healthy person who also has Celiac disease. I would like to get to know people area State. thanks.


#72

I was diagnosed with celiac about a year and a half ago, first by biopsy and then blood test (I know, it’s usually the other way). My husband is wonderfully supportive and has gone almost totally gluten free with me but it’s still a challenge, particularly when we visit family as they don’t seem to grasp the concept that I must read everything before eating it, even a crumb of gluten could contaminate my food, etc. So it’s helpful for me to have support of others who understand!!


#73

i have celiac disease and dont really have any one to talk to about it, people who dont have it dont understand and some dont care. i also want to find out what the long term effects of the disease are even if treated.


#74

I am a Celiac Personal Chef looking to get connected to people in New York who could use my services. I have Celiac Disease myself which makes me a sympathetic and trustworthy chef. I am passionate about helping the community and understand how difficult it can be to maintain an interesting and fulfilling diet.


#75

I was diagnosed in October 2006 and am still trying to live with this disease.


#76

Just tested for Sprue & have it, sister has had it since 70’s
Would like to know just what can be eaten. Thank you


#77

Hi, I’m 39 and was diagnosed with Celiac Disease earlier this year…something I’ve never heard of before. Now it’s a whole new universe I get to explore on my way to getting healthy!


#78

Just got diagnosed with CD this week…been sick for 8 years at the very least before this latest diagnosis. Not sure how to cope, don’t know anyone else with this, scared I’ll screw up this diet and start feeling like I’m dying again. Advice welcome!


#79

My name is Amy and I was diagnosed with celiac’s while I was hospitalized with a life-threatening blood clot back in September 2006. It has been a difficult road, figuring this out and learning what I could eat, but I have had awesome support from my family and have read a lot of useful information. I am looking to learn more from others who have dealt with this issue and have more experience, and I would be willing to help out anyone else who is as scared and confused as I was in the beginning!


#80

I have this condition myself and would like to talk about it with other people


#81

I have celiac disease. (recently diagnosed) My problem so far is I love/crave bread. Think I always have. I need help finding meals that do not contain any wheat. (besides eggs-which I am getting sick of)


#83

3 months now recovering from celiac desease … thankfully a tolerable cure, how ever it does take an extra effort to successfully control. I’m in my late 50’s and now reflect on the many symptoms I’ve encountered over the years.


#84

I found out three years ago that I had (or have) Celiac Disease because of an article in a parenting magazine. I had been diagnosed with IBS and several other things incorrectly. All those symptoms pointed to Celiac Disease according to that article, so I got checked out and found out that’s what I had. My oldest child was diagnosed last year at the age of 4 as well. Thankfully both of us got diagnosed long before we became very ill.


#85

I have just recently been diagnosed with celiac disease. I was just needing information about the disease, different foods, and recipes


#86

I was just diagnosed with Celiac and I have a four year old daughter that my doctor has told me has a very large chance at having it by her past medical history. Since I was diagnosed so recently (yesterday) I am just not dealing with this so well. I am twenty five years old and everything that they have diagnosed me with in the last ten years has just been a silent symptom of this diagnosis and now I don’t know what to believe.


#87

I was just diagnosed with Celiac and I have a four year old daughter that my doctor has told me has a very large chance at having it by her past medical history. Since I was diagnosed so recently (yesterday) I am just not dealing with this so well. I am twenty five years old and everything that they have diagnosed me with in the last ten years has just been a silent symptom of this diagnosis and now I don’t know what to believe.


#88

I don’t have Celiac disease (so far as I know.). I have been diagnosed with narcolepsy and I take Xyrem at night to sleep better. I do have some IBS symptoms, and have found out that one of the tendencies for people with narcolepsy is that they have a glycogen storage problem and also sometimes gluten binds with the receptors in the brain that cause narcolepsy. There have been many people that go on a gluten free diet and all of the symptoms of narcolepsy go away, or are really improved. So there is in narcolepsy a gluten problem. So I want to start a gluten free diet, but right now, I am a major carb lover, I love breads and bagels, wheat cereals, etc. They always say you love the things that bother you the most.

wahela