Cushing's Syndrome Member Introductions


#1

Please take a moment to introduce yourself to the community. Everyone here has something to share about Cushing’s Syndrome. For the discussion boards, we ask that you keep your full name and location private.


#2

Life is about health, family and friends, but sometimes its hard to keep focus on what is most important


#3

I live in the northeast and suffer from seasonal depression. I basically hibernate from november until april. Besides moving, I’d really like to talk to people about how they’ve conquered their depression. I’m a really cynical person and depression has got me beat :confused:


#5

hi there, i work with the careplace team. i think careplace is awesome. i hope it will really help people to share, support eachother and learn. we can all use support and understanding and it is so important for all of us who have experienced difficulties to have a safe and informative forum in which to do so. thanks for visiting - it is really rewarding for all of us to see people reaching out to eachother - it is what careplace is all about.


#6

Life is about health, family and friends, but sometimes its hard to keep focus on what is most important


#7

Founder of the TransGlobal Health Community Center at http://transglobalhealth.com


#8

Founder of the TransGlobal Health Community Center at http://transglobalhealth.com


#9

I live in the northeast and suffer from seasonal depression. I basically hibernate from november until april. Besides moving, I’d really like to talk to people about how they’ve conquered their depression. I’m a really cynical person and depression has got me beat :confused:


#10

I’ve been dealing with Cushing’s disease since 2000. My entire pituitary gland was removed…I’ve had photon Knife Radiation and I remain with Cushing’s disease. Knowing how Cushing’s has effected every aspect of my life and how debilitating it can be… I have a desire to help others and bring more awareness to this disease. I’m an officer in the Cushing’s Understanding Support & Help Organization (CUSH). Being involved with CUSH helps me to accept that having Cushing’s is not all in vain.


#11

58 year old retired phys. ed. teacher from Pennsylvania. Diagnosed with Cushings and had a pituitary tumor removed within two weeks in the beginning of Oct. Recovery has been steady and consistant


#12

I was in the Cushing’s Community on Yahoo and was sent a link to this so I thought I would join and get to know some of you also.


#13

Pituitary Surgery in Sept. 2006 at Alleghany General Hospital with Dr. Jho


#14

Hi Everyone
Wishing you a good morning from the NW USA-been suffering with symptoms of cushings, autoimmune stuff, hormonal changes and chronic pain where I use a TENS unit to interupt the pain signal. Anyway hope we can better serve each other better with knowledge and a better quality of life… ~Sabina


#15

4/10/07 Self-diagnosed Cushings. 34 yo married. I have many of the signs, including the buffalo hump, depression and panic attacks, missed periods, muscle aches, central obesity. I am online hoping to learn from all of you. I live in San Antonio, TX. I have an appt with endocrinologist Dr. Robert Dons on 5/9/07. He was recommended by the message boards. Look forwarding to lots of learning. ~Melissa


#16

I am not yet diagnosed,I am learning as much as I can about this disease and hope to make friends.Thanks,Kimmie


#17

I was diagnosed with cushings about five years ago and had surgery in my pituitary gland to remove the tumor because i am cured i no longer have to see my encronologist. I am happily married for twelve years and havea nine year old son and a seven month old son and live in reedley california in central california. I am here to listen and be a friend to others who are battling this disease


#18

still trying to be diagnosed w/cushings, but have a great neuro surgeon in my corner, who will not give up. will keep everyone informed


#19

I have Multiple Sclerosis, and because of bad reactions to normal treatments for MS, I was getting in addition to the normal steroid treatments for MS flares, I was getting 1000 mgs of solumedrol (steroids ) every month. This caused me to now acquire exogeneous Cushings disease and all the painful things that goes with it on top of all the painfull things of MS. Plus now I dont know how they will treat my MS. I do have an appt with the Mayo clinic coming up because no one knows what to do with me or how to treat me. On top of this I have mediasteinitus ,a subclavial blood clot, of course chronic pain, feel like im wearing a fat suit with the constant swelling. Heck I cant remember what all there is anymore. Its just gotten so old, and I’m tired of fighting , because something else always comes up.
Thanks for listening,
Cherie


#20

For years I have been diagnosed with some thing or another. I would go to the doctors office with this massive spreadsheet of symptomes. One day, while reading the symptomes of cushing’s, I realized that I had them all. Even the insignificant ones. I went to many specialist who always said that my test results where inconclusive, slightly unusual and then they would drop the ball on me. Letting me pass through the cracks. Then a saw a GP who just did not want to give up on me. Telling me to hang in there just a little longer. I saw a Cushing’s specialist who at first glance looked like would give me the boot also. But then something happened. Tests would come back negative but the physical manifestations were anything but. The calcium and phosphorus in my blood was normal but the bone density scan showed severe ostheoporosis. My prolactin was normal but could shoot milk from accross the room. And that is to name a few. She put me on cortef because of one low morning cortisol, not to mention the dexa suppression test. I finally got my period two months in a row. But the adrenal tests where normal so I was cut off cortef. The endo was so confused, since she did “the most scientific tests” she could do. That all this can only be “coincidence”. At least, it peaked her cusiosity. So instead of sending me packing, wich was the plan the last time I saw the endo, she is making me do another batterie of tests for the next 6 months so"we can catch the cyclical Cushing’s" and I am now being followed by an internist who might be able to connect the overwhelming dots between my symptomes. All of this provided I am still alive in six months. Like any sick person, the pain is quite umbarable and not managed. Nausea and reflux alow me 8-10 bites of food a day so I am getting weaker by the day. And sleep is…well… why talk about something that is not even here. I am no longer looking for the ultimate diagnosis, but to be able to have a better quality of life, how ever long that will be. My friends and family and caregivers are all helping to respect my wishes


#21

For years I have been diagnosed with some thing or another. I would go to the doctors office with this massive spreadsheet of symptomes. One day, while reading the symptomes of cushing’s, I realized that I had them all. Even the insignificant ones. I went to many specialist who always said that my test results where inconclusive, slightly unusual and then they would drop the ball on me. Letting me pass through the cracks. Then a saw a GP who just did not want to give up on me. Telling me to hang in there just a little longer. I saw a Cushing’s specialist who at first glance looked like would give me the boot also. But then something happened. Tests would come back negative but the physical manifestations were anything but. The calcium and phosphorus in my blood was normal but the bone density scan showed severe ostheoporosis. My prolactin was normal but could shoot milk from accross the room. And that is to name a few. She put me on cortef because of one low morning cortisol, not to mention the dexa suppression test. I finally got my period two months in a row. But the adrenal tests where normal so I was cut off cortef. The endo was so confused, since she did “the most scientific tests” she could do. That all this can only be “coincidence”. At least, it peaked her cusiosity. So instead of sending me packing, wich was the plan the last time I saw the endo, she is making me do another batterie of tests for the next 6 months so"we can catch the cyclical Cushing’s" and I am now being followed by an internist who might be able to connect the overwhelming dots between my symptomes. All of this provided I am still alive in six months. Like any sick person, the pain is quite umbarable and not managed. Nausea and reflux alow me 8-10 bites of food a day so I am getting weaker by the day. And sleep is…well… why talk about something that is not even here. I am no longer looking for the ultimate diagnosis, but to be able to have a better quality of life, how ever long that will be. My friends and family and caregivers are all helping to respect my wishes