Hey everyone Im sarah and I have spinabifida and i would like to hear others expreinces with it.
sarah
I am actually interested in fibrosing mediastinits, which wasn’t listed, but hoping to find others with this disease, it is a rare disease, mine is idiopathic not histoplamosis.
My husband and son suffer from depression. My son is 16 and cuts himself.
my name is niki and i have been struggling with severe depression my whole life. it really peaked about 3 years ago when my twin sister died and ever since its been one big disssppointment after another. life has been really harsh to me and the only joy i have is my son but this condition has me so hard right now, i can barely function as a single mother. i had a breakdown today and tomorrow i maybe commiting myself. i need an outlet. i want to talk…i have so many friends but so little that care. like alone is a crowd of people. i need help. i need to talk
I’m not interested in epilepsy, per se - I live with it every day - every moment - it controls every aspect of my life - I am here to find support and encouragement.
I had alopecia areata first time in 2004. All ok now - but have a lot of hair breakages but no gaps at the moment. Any way it really knocked me initially - I found it devastating - but I tried a lot of cures and my hair grew back even though have a lot of bright white hairs in between. I try various things when I feel my scalp tingling - iodine, rub ginger on etc. Even did colour therapy. Tried dedtunia also. I never dye my hair now or have perms. I’m here to help with ideas if somebody just gets a gap or two and is very sad when first discovers a hole or two where hair is gone.
I was diagnosed with Empty Sella fifteen years ago. Anxious to learn all that I can.
Thank you for setting this group up.
Nancy/kaiwaina
It’s not fun living with Social Anxiety Disorder. I didn’t know what it was until 3 weeks ago, but I’ve been dealing with it for 20 years or more. It’s not just shyness, it’s crippling shyness. I’m learning more & more about it these days, and am looking for anyone else who is trying to overcome it.
I have depression, anxiety and hyper-sympatetic issues.
I have problems with bladder pressure and frequency, could
be intersticial cystitis, doctors are unsure. At times, I feel exetremely weak. I want to connect with others who have similar problems and find out what has helped them.
Hi all,
I am a male stutter from India. I need support from you guys. I want to make friends
Want to connect with others who are suffering. Am disgusted with medical community and others not understanding my situation at all. Need friends. i am happily married, 59 year old. Live in country in Finger Lakes area of N.Y. state.
Laura Ferguson is the founder of a spina bifida support group that she is shutting down. She’s asked all members of that group to join her here so that’s what I’m doing. I was born with SB so that makes me interested in it LOL! And I want to connect with others that live with it. Thanks~Angie~
Hi, my name is Jenny. a.k.a. Jenny Zombie Jingles. I wanted to join this site so I could get some support with my depression and anxiety etc… problems. I also just need someone to talk to who know’s what I’m going through.
If you find me in the streets you would pass me for a happy go lucky kind but truely, I have just lost all meaning of life.
Life has just become a cycle of pleasure and pain and the sad part is a part of mine observes it when I am enjoin or when I am sad. I am really bored of living. I could pull it off for 26 years, but now I feel there aint nuthing worth living for. People temme whole life is ahead of you marriage kids blah blah. Well I am confident that I can accomplish anything that I put my mind, body and soul into and life just seems to me like solving issues of different level of toughness and variance. I really dont know what else to say. Just want to end this troublesome life, but I am holding back just cos I know my parents wud be unhappy. But now a days that doesnt seems a strong excuse anymore.!!!
Well first my name is Aubreon im 16yrs old
i was diagnoised with lupus when i was 11yrs old
im still tryin to understand what lupus really is
right now im not as sick as i was when i was diagnoised
but i have been in the hospital several times
ummm…sometimes i just feel really depressed to the point where i wanna die
i have really bad migranes
[i would like to learn more about why studies show lupus makes people like me so depressed]
This is a very rare condition. I don’t know anyone else who is afflicted with it. As doctors are even baffled by this disease, finding info about treatment is difficult. I was diagnosed 2 years ago, and already cryo has wreaked havoc on my body. I have tried several therapies, but any and all help is welcome!!
My name is Liz. I am married with 4 cats. I was just diagnosed with IBS on May 14, 2007. I have been prescribed an antispasmodic, which works well, but I still struggle with the unpredictablity of this condition. I lost 6 hours of my day today with a “spell.” I would like to learn how to manage it better, if possible, instead of just waiting until symptoms hit and taking a pill.
I’m someone that has suffered from depression for most of my life, due to many negative events that have happened in my life, and zero parental support or very little support from my parents. so I would just like to have someone I could talk to.
I want to break my cycle of depression. After many years of denying my MENTAL ILLNESS which has resulted in the recent loss of two consecutive jobs I want to be well and be able to deal with stressful situations in a positive matter.