I am 23 and I have DMD
My 10 year old son has DMD and I have been doing searches for support forums
my name is ana i have a son who is 5 years old with muscular dystrophy its not known yet what kind he has , i need to find out all i can about this and some activities or camps there is available for him ,i also need to get in touch with the mucular dystrophy association thank you.
Everything.
Hi, My name is Dianna Baker and I am interested in this condition because I have a 17 month old grandson who has had problems with muscle control since he was born. He is aspirating his food into his lungs. In fact he is at the lung specialist today, and after poor results from a swallow study…he may need a permanent feeding tube. He has been to doctor’s (including Riley’s Childrens Hospital) on and off, ever since he was born. I’m trying to obtain knowledge of anything that may help me understand. Test after test has brought us no answers and has the doctor’s very confused.
I have a son with duchennes who is 16. He was diagnosed at age 5. My husband lost his job recently, along with our insurance. I would like to find out about any programs that we may not have heard of yet.
My name is Jill. I have a son Anthony, 7 w/DMD. Always looking to chat.
Would like to connect with other mother’s of boys with DMD.
My son Justin has DMD, and he is 7.
My younger brother passed away about two years ago from Duchenne’s.
I’m a Grandfather of a two year old boy with Duchenne.I’m looking for information on the research being done.
Hi - new to this forum
Hi, I am anuj . I am 22/m, and have duchenne muscular dystrophy. I am from NJ. I join this group, looking to meet & make new frnds, and chat with other people that also have duchenne muscular dystrophy.so hope to talk & get to know some ppl here.
nways u guys have provided a cool site here.thanx for tat.
Hi Anuj! Great to meet you. I’m a mom in Michigan w/ twin boys who
are 7 years old. Ethan has autism and duchenne, but is doing
well…very happy. How are things going for you? Linda
Quoting anuj411 dmd-cpt2248@lists.careplace.com:
Hi, im Jo, mum to Liam whos 9 with dmd. I also have two older boys who are Jade 13, Dylan 11, and younger daughter Lydia 5. My partner Gary and I live in New Zealand and I would just like to be able to share experiences good or bad. Jo
Hi Jo,
Welcome to our site. I am 32 with DMD. Please feel free to write me a line or ask anything. Later, Jason
[[[[[[[[on April 14, 2007, BlueAngel wrote:
I am the mother of 3 sons with DMD, one who passed away almost 2 weeks ago.
Terri ]]]]]]]]
A year and a half later, I just realized I didn’t send much of a message :).
I have 3 sons. Now my oldest son Nathan is 21 and my youngest son Christian is 12. Alex, my middle son died April 2, which was 4 days after his 16 birthday, he would be 17 now.
Hello, my son Ben, 9yrs, is living with Duchenne’s. I am hoping to talk with other parents who are going through the same situations. He is still walking, using a wheelchair just for conservation of energy. We bought a new house, hoping that this one will work out better.(Ranch) Would love to hear about others who have modified their homes. We are looking to build ramps this spring and would love ideas and what worked for others.
hi there, i work with the careplace team. i think careplace is awesome. i hope it will really help people to share, support eachother and learn. we can all use support and understanding and it is so important for all of us who have experienced difficulties to have a safe and informative forum in which to do so. thanks for visiting - it is really rewarding for all of us to see people reaching out to eachother - it is what careplace is all about.