Hi Sue, I’m Tina, new to the group. I read your first post with tears in my eyes, I don’t have the back pain but am a cancer survivor with lymphedema, fibromyalgia, chronic fatigue, TMJ and other **** life dished my way. I hear you on the pain, it can get pretty bad. I once laid in bed with the AC on after surgery thinking “It is comfy here, pains not too bad at the moment but it can get worse and it wouldn’t be bad to go right now”. But the moment passed and I realized it was my goal to help others in the same boat, I started Lymphland website and support group for lymphedema.
Lymphedema is a condition where your body fills with fluid and swelling, it is progressive and therapy and constant care is the only way to try to maintain it and it’s alot of overwhelming work and very painful. I know how I feel when the fluids in my back, it hurts.
My lymphedema therapist’s boyfriend has a badly messed up back, he went for spinal decompression, it was alot of money but he is 85% better and only takes pain meds if he does something stupid, just thought I’d mention that to see if you knew about it. I didn’t get to read all the back posts as we have a storm coming, I live in NY, severe storms today, so if I didn’t get the gist of the post and it’s not your back, I’m sorry, just wanted to get a quickie post out when I saw the subject line.
I’ll be back to read more later after storms pass.
It’s nice to meet you and I’m glad you’re sticking around, it is good to share things with people who understand.
hugs, Tina